BenO
Member
- Joined
- Mar 4, 2020
- Messages
- 17
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- IL
- City
- Pingree Grove
Sorry for this post . I posted before I know, and I apologize for this.
My symptoms have progressed pretty rapidly the last two weeks.
I attached neck pic as well as EMG. He did not check all the muscles he annotated here seems like he just put a blanket N everywhere after checking muscles he did do left side and back of neck and trapezius though. Did not do any spinal musculature.
My thoughts are another neuro appointment but I dont even know what to ask for at this point , muscle biopsy? Heavy metals? A more in depth lyme test? Another EMG? I am lost , and I am sorry for this. Thank you. I will not post anything else. I will only listen if anyone has any ideas . I have made a donation . Thank you.
My symptoms have progressed pretty rapidly the last two weeks.
- Extreme neck fatigue/strain started in posterior neck has now moved to front muscles of neck.
- I now have pain that seems to originate at all of the neck muscle tendons. Deep left Shoulder and trapezius pain.
- Posterior neck muscle appears to be wasting left side especially as well as posterior left shoulder. Also my hands especially right hand between thumb and fore finger.
- Fatigue/cramps in abdominal muscles .
- Fatigue/cramps in lumbar , mid, upper back.
- This on top of perceived weakness and cramps in arms and legs especially left side and facial muscles , plus twitches since onset.
- My hands, wrists joints, pads of fingers have all become painful when using them.
- Nasal voice with post nasal drip.
I am thinking axial onset ALS due to the posterior neck as well as trunk issues being the major areas. I had a clean EMG and clinical 2 weeks ago 30 days after onset . I dont know if the EMG picks up axial onset or not. Im not a doctor but I cant find anything else that fits whats going on with me.
I attached neck pic as well as EMG. He did not check all the muscles he annotated here seems like he just put a blanket N everywhere after checking muscles he did do left side and back of neck and trapezius though. Did not do any spinal musculature.
My thoughts are another neuro appointment but I dont even know what to ask for at this point , muscle biopsy? Heavy metals? A more in depth lyme test? Another EMG? I am lost , and I am sorry for this. Thank you. I will not post anything else. I will only listen if anyone has any ideas . I have made a donation . Thank you.
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