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SteveS

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Joined
Sep 23, 2008
Messages
98
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Loved one DX
Diagnosis
11/2008
Country
CA
State
BC
City
Campbell River
The wife has been experiencing some extreme swelling in her calves ankles and feet after being in her wheelchair for too long or sitting in her lazy boy chair. She goes to bed anytime after 7pm so she can elevate her feet and watch TV before sleep. With her foot drop and of course unable to really move her legs at all I am at a loss as to what to do for her to help stop the swelling. The only time I have seen her feet not swollen in the last year was after her IVIG they tried before her diagnosed of ALS thinking her issue may have been CIDP. Any other PALS or CALS experiencing this and or seen this and have any idea's? We have discussed it once with her GP and I guess we need to discuss it again and probably email the team at the ALS clinic we are now going to.
 

brendapals

Senior member
Joined
Jul 6, 2008
Messages
953
Reason
PALS
Diagnosis
06/2008
Country
US
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any
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any
hey Steve,
That's probably the best idea-email her ALS team. It could be she's holding fluid in her ankles/feet?
Will certainly keep you both in my prayers,
take good care,
brenda
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Steve. Elevation is about the best thing for swelling. Lazyboy chairs can be bad as some of them actually cut off the circulation. I'll look up the link about it. My Cardiologist put me on Lasix for swelling. Makes you pee a lot for first few hours after taking and helps somewhat but you need potassium supplements unless you can eat 2 bananas a day. Here is the link. Good reading.
http://www.living-with-als.org/Diane/swelling.html

AL
 

abbas child

Very helpful member
Joined
Feb 29, 2008
Messages
2,159
Reason
PALS
Diagnosis
07/2007
Country
US
State
Maryland
City
Eastern Shore
Steve, I agree completely that raising her legs is a good move, but have you tried compression stockings on her? I'm wearing TEDS, and it was very helpful for my swelling. They are considered a "medium" compression, and I'm told a stronger compression is available with a zipper.
Ann
 

SteveS

Active member
Joined
Sep 23, 2008
Messages
98
Reason
Loved one DX
Diagnosis
11/2008
Country
CA
State
BC
City
Campbell River
Was looking at those while at the pharmacy today getting a perscription filled for her. Thanks.
 

bsg3746

New member
Joined
Sep 26, 2008
Messages
3
Reason
Loved one DX
Diagnosis
03/2005
Country
US
State
Florida
City
Oviedo
Lasix

My Husband, Buddy, was diagnosed March 2005, we are beginning our 4th year. He is completely wheelchair bound and his feet, ankles, calves and hands became so swollen and then he started coughing up a ton of liquid - I began to worry about congestive heart failure. I called our Hopsice nurse and they have put him on Lasix and inserted an internal catheter. I do have to add liquid potassium to the flushing liquid when I flush his feeding tube because the lasix depletes the body of potassium. He's only been on the Lasix for a few days but I do see a slight difference in his hands. Hope this helps a bit.

Brenda
 

CRF8

Active member
Joined
Dec 3, 2008
Messages
70
Reason
Loved one DX
Diagnosis
11/2008
Country
US
State
FL
City
Orlando
same city

Brenda we are in the same area. Can you email me at [email protected].
My wife is the pals, I have a question, thanks
 

lerg62

Member
Joined
Dec 13, 2007
Messages
17
Reason
Loved one DX
Country
US
State
NY
City
Hicksville
Buddy's Sister

I see my awesome sister in-law posted about Buddy's swelling. I was just down visiting Buddy and the Lasik doesn’t seemed to help at all, the swelling in his legs is unbelievable it goes up his whole leg and they are hard as tree trunks, i mean so stiff, i can't imagine it's just from nonmovement....... and he is so uncomfortable. the Lasik does not seem to be helping at all. Hospice is going to try upping the dose, his legs are also very hot and red at the shins. Has anyone experienced this?
 

JAKE

Distinguished member
Joined
Nov 27, 2007
Messages
110
Reason
PALS
Diagnosis
11/2005
Country
US
State
Louisiana
City
Winnsboro
My wife always says my legs are cold from below my knees to my feet. She's always telling me my legs and feet are like a block of ice. The only noticable swelling I get is in my feet, if I don't keep them propped up at my pc. Jake
 
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