jonico
Distinguished member
- Joined
- Feb 21, 2017
- Messages
- 157
- Reason
- Lost a loved one
- Diagnosis
- 12/2014
- Country
- US
- State
- NY
- City
- Central
It's been a month to the day since my wonderful wife of 34+ years passed away peacefully, with me and our son and daughter at her side. At the local Hospice Inn, she had a nice room where we set up her Tobii Eye-Gaze so she could chat with us in the closing moments of her life. We cried our eyes out and laughed our asses off, and just plain cherished our final time together as Four.
Given all the challenges we faced during Nicole's 6+ year ALS adventure, we considered ourselves fortunate that she, like Darcey, was able to choose to go on her terms...when the time was right. She was both quite ready and not at all ready, but she knew it was time for a variety of reasons. Her journey was wildly challenging and yet full of life and beauty! I'd like to let her obituary speak to much of that for me, rather than try to articulate it here. Note the photo montage that cycles through top left of her page too.
Although I didn't post here often, I want you all to know I gleaned a lot of valuable insight from all of you, and truly appreciated the opportunity to be a part of such a special group of unique friends. I will do my best to pop in more often now to offer my own insight and encouragement, and undoubtedly continue to receive similar in return.
Nicole became a rather prolific and talented poet these past several years. I'd like to share one poem she crafted using only her ever sharp brain and her beautiful, smiling eyes.
Exactly as she eye-typed it:
Blind meditation
The blinds squint at me
The ebbing sun barely discernable
Peering through the blinds; a bland activity
but it is not the glamorous or sumptuous that often gives us pause
remember when the only love I had were for those that were dust-free?
remember when my childish hands grappled at strings struggling to maneuver?
what an evolution!
I now exist in a realm with plenty of time to notice
Learning how to discern the beauty in the banal
My blinds transmit light in fascinating patterns; shadows growing absurdly sharp angles
Generous to my starving eyes; slits of yard and house and sky
It is so unexpected but wonderful; how much more seeing can I learn
Given all the challenges we faced during Nicole's 6+ year ALS adventure, we considered ourselves fortunate that she, like Darcey, was able to choose to go on her terms...when the time was right. She was both quite ready and not at all ready, but she knew it was time for a variety of reasons. Her journey was wildly challenging and yet full of life and beauty! I'd like to let her obituary speak to much of that for me, rather than try to articulate it here. Note the photo montage that cycles through top left of her page too.
Although I didn't post here often, I want you all to know I gleaned a lot of valuable insight from all of you, and truly appreciated the opportunity to be a part of such a special group of unique friends. I will do my best to pop in more often now to offer my own insight and encouragement, and undoubtedly continue to receive similar in return.
Nicole became a rather prolific and talented poet these past several years. I'd like to share one poem she crafted using only her ever sharp brain and her beautiful, smiling eyes.
Exactly as she eye-typed it:
Blind meditation
The blinds squint at me
The ebbing sun barely discernable
Peering through the blinds; a bland activity
but it is not the glamorous or sumptuous that often gives us pause
remember when the only love I had were for those that were dust-free?
remember when my childish hands grappled at strings struggling to maneuver?
what an evolution!
I now exist in a realm with plenty of time to notice
Learning how to discern the beauty in the banal
My blinds transmit light in fascinating patterns; shadows growing absurdly sharp angles
Generous to my starving eyes; slits of yard and house and sky
It is so unexpected but wonderful; how much more seeing can I learn
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