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mjarosz7

New member
Joined
Apr 2, 2007
Messages
4
Reason
PALS
Country
US
State
NE
City
Lincoln
Hello Everyone - I am new to this site and need some advise from anyone who is willing to help. Let me give you a little background of my initial sypmtoms and where I'm at today. It all started back on July 24, 2004 I go real sick with a upper respiratory infection. A few days into it I started getting real dizzy and a few months later was diagnosed with Vestibular Neuroits. In Nov. 04, I started noticing my muscles moving. Well it continued and I still have body wide faciculations to the day. The severity comes and goes. Well after reading what can cause these I gotten frighten and made an appointment with a neuro. In Feb 05 he done an EMG and Nerve Study on my arm and it was normal and he diagnosed me with BFS. Since then I have developed a tightness in my throat that comes and goes. I've had this for probably about a year now. I've also got a second opinion from another neurologist with the same dianosis, BFS. I have been back to see them both and they tell me the same thing. Well this last week my throat feeling got really bothersome, so I called my ENT and he ordered a Barium Swallowing test. The results were that I had a henia and that my esophogus was not felt to have completing normal contractions. This really is freaking me out that this is more serious. My doctor and neurologist both said that this really had nothing to do with ALS and it was probably stress related. Can anyone give me any insight or concerns on my story and results from my swallowing exam. The advise would be greatly appreciated. Thanks!
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi mjarosz7. With 2 neuro's telling you it's BFS and the ENT telling you it's not ALS I'd be counting my blessings and stopping worrying. At some point you have to trust the doctors and if they are wrong and you are worse off a year from now then deal with it then.
In the meantime live your life as best you can.
AL.
 

Saubier

Active member
Joined
May 1, 2007
Messages
67
Reason
PALS
Country
US
State
MD
City
Colora
mjarosz7,

It seems to me that there is something about the EMG and Neural Conduction studies that reveals ALS unmistakably. If they did those tests and didn't diagnosed ALS, I doubt if you have that.

Pappy.
 
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