MindyR
New member
- Joined
- Aug 29, 2015
- Messages
- 8
- Reason
- PALS
- Diagnosis
- 06/2015
- Country
- US
- State
- NJ
- City
- Somerset County
Hi, It has been some time since I have been on the forum, but last night I had quite a scare and I'm hoping to get some advice. I have been having increasing difficulty with swallowing in the last few months. At my last doctor visit we discussed a peg and I am scheduled for the procedure on July 19. In the meantime, my swallowing has been getting progressively worse. I am drinking nectars and carbonated drinks, but no water or other thinner liquids. I've been eating softer foods and foods with gravies, sauces, or cream. Last night I was just eating applesauce and began to choke. And then I started to panic and that only made my breathing worse. I am on bipap 24/7. Thank goodness for my calm husband who talked me through it. Today, I have been absolutely terrified to eat. I've drank nectar, had some eggs and sour cream, and some baby food fruits. We plan to call the doctor tomorrow to see if we can move up the date for the peg, but in the meantime any suggestions would be greatly appreciated. Thank you!