Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,459
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
Put together by the FALS team at IAMALS
It is for at risk people from a FALS family Do not answer if you are gene negative or if your family is not acknowledged FALS . if your parent has/ had FALS but you haven’t tested or if you did test and are a carrier this survey is for you
docs.google.com
It is for at risk people from a FALS family Do not answer if you are gene negative or if your family is not acknowledged FALS . if your parent has/ had FALS but you haven’t tested or if you did test and are a carrier this survey is for you
Pre-Symptomatic ALS/FTD Treatment Survey
Update 10-21-22 - Our Survey is now closed! We have had 197 responses. Keep an eye out for updates on results! Thank you for visiting our survey. We are the I AM ALS Familial ALS Team – individuals who are impacted by genetic ALS and FTD, most commonly as pre-symptomatic carriers and those...
docs.google.com
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