- Oct 16, 2014
- San Francisco
I was personally very grateful to see a camp offerred to the minor children and grandchildren of PALS. As a CALS I was overwhelmed with gratitude when I saw the notice. Just wonderful, I thought, I wept and sent the notice on to my daughters in law who might want to participate with our grandchildren. My heart bleeds for them to have lost their once normal relationship with myself and my husband through this now five year stint dealing with ALS. My husband had respiratory onset, is now almost totally paralysed, has been on the ventilator and tube feeding for five years this past October. The effects upon our family have been painful for me see. Thank you to the ALS association for this new (to me) program.