Amen Cindy.
I am trying to live every day the best I can.
Interestingly, going through this, I have realized that a perfect day for me is getting up with the kids, making their lunches, seeing them off, caring for them, doing their laundry, cooking dinner...all those things that seem like chores when you feel good. Now, it's all I want to do.
Mamaoftwo, I hear you and this is one rollercoaster ride I want off of. When my EMG came back clean, my husband was like "great, it's nothing bad". So now, I he thinks it's life as usual again. But, I know my body and something is very wrong with it. I guess it's okay for him to not worry right now.
Cindy, sorry to hear about your daughter's leg...hope she heals quickly.
Anyway, I hope you all have a restful night and know that you're not alone!
Tracy