Just J
Distinguished member
- Joined
- Oct 30, 2007
- Messages
- 300
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2010
- Country
- US
- State
- MD
- City
- Havre de Grace
Hello All. I found this forum after doing research today on symptoms that my husband is having. We've been through 2 yrs of hell and no diagnosis (I'll try to be brief). About 2 yrs ago he began having major numbness in his feet. By Aug 2006 his mobility got so bad that he had to give up his favorite passion, golf. Yes -- we were going to doctors since Jan 2006 Orthopedist and Neurologists. He has been tested for Lyme's disease and MS. He had surgery in Jan 07 to releive pressure on C4, C5 (fusion) and again on Oct 03 to re-do surgery and include C6 in the fusion. Result NO RELIEF of symptoms. We are in the Baltimore area and are dealing with Johns Hopkins Doctors so felt like we were in good hands. Long story short...after 2 surgeries there has been no relief. His primary symptoms are complete numbness in both legs, stiff legs (he cannot bend at the knees). He has to pick his legs up to get in bed. Has constant muscular cramps in legs and constant fasciculations in legs. Has major instability in walking and difficulty goiong up and down steps and standing in the shower. He has no muscle weakness in his upper body or hands so we assumed that ALS was not a possibility but after reading some posts I am not convinced. BTW - my husband is 58.
He is going to try to get back in to see another doctor. I saw the recommendation to see an MDA Neurologist...any other suggestions? It is much appreciated.
He is going to try to get back in to see another doctor. I saw the recommendation to see an MDA Neurologist...any other suggestions? It is much appreciated.