Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,472
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
This is an observational study looking at biomarkers in people starting Radicava. It isn’t for people already on it unless you are about to restart after a long pause. It is not a trial. They are looking to collect biomarker data only benefits would be satisfaction of contributing to knowledge and interaction with the study team. Having done multiple observational studies I think there is benefit in visits as you get followed closely and develop a stronger relationship with the clinic. There are multiple sites
Radicava® (Edaravone) Findings in Biomarkers From ALS (REFINE-ALS) - Full Text View - ClinicalTrials.gov
Radicava® (Edaravone) Findings in Biomarkers From ALS (REFINE-ALS) - Full Text View - ClinicalTrials.gov