Study for anyone about to start Radicava

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
8,889
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
This is an observational study looking at biomarkers in people starting Radicava. It isn’t for people already on it unless you are about to restart after a long pause. It is not a trial. They are looking to collect biomarker data only benefits would be satisfaction of contributing to knowledge and interaction with the study team. Having done multiple observational studies I think there is benefit in visits as you get followed closely and develop a stronger relationship with the clinic. There are multiple sites

Radicava® (Edaravone) Findings in Biomarkers From ALS (REFINE-ALS) - Full Text View - ClinicalTrials.gov
 
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