Hey
I've been going through this for three years or so now... I'll start at the beginning.
I first started feeling weak in one of my feet.. there was twitching as well but normal feeling. Then my left arm started feeling weak and it started twitching too.
Then later, my toes started weakening and twitching and then my fingers (not all at once, started in the little finger on one hand, then proceeded to the thumb but now all fingers are affected).
Now both my legs, my arms, fingers, toes, neck, jaw, mouth (feels 'heavy' to smile) and stomach are affected. I twitch pretty much everywhere now and I feel very heavy all over.
Also, when I move my fingers, they 'shake' a lot.. I can't keep a finger lifted in fixed position, it will keep shaking as it feels very heavy to hold up.
The jaw is affected in the same way, it feels heavy to open and close and it shakes when doing so, making it annoying to talk.
My tongue has also been twitching but that's long ago now.
And, my eyes are starting to feel heavy as well.. when I read, they get tired right away, especially my right eye.
Also - nothing has ever gotten any better.. once I feel week someplace, it remains like that.
I've had some tests.. an EMG, 'brain scan' (don't know the term), seen a few neurologists (but they only do the normal "walk on your heels", squeeze your fingers, etc. tests) and had a lot of blood tests. I had a slight B12 deficiancy but I've been taking pills for that now for a long time without any help at all.
I don't know what to do, my doctor seems to have given up and seeing other doctors isn't much help either, they just have no clue and won't send me to more neurologists since I've seen a few already.
But it keeps getting worse and worse, albeit rather slowly.
Any input would be greatly appreciated!
I've been going through this for three years or so now... I'll start at the beginning.
I first started feeling weak in one of my feet.. there was twitching as well but normal feeling. Then my left arm started feeling weak and it started twitching too.
Then later, my toes started weakening and twitching and then my fingers (not all at once, started in the little finger on one hand, then proceeded to the thumb but now all fingers are affected).
Now both my legs, my arms, fingers, toes, neck, jaw, mouth (feels 'heavy' to smile) and stomach are affected. I twitch pretty much everywhere now and I feel very heavy all over.
Also, when I move my fingers, they 'shake' a lot.. I can't keep a finger lifted in fixed position, it will keep shaking as it feels very heavy to hold up.
The jaw is affected in the same way, it feels heavy to open and close and it shakes when doing so, making it annoying to talk.
My tongue has also been twitching but that's long ago now.
And, my eyes are starting to feel heavy as well.. when I read, they get tired right away, especially my right eye.
Also - nothing has ever gotten any better.. once I feel week someplace, it remains like that.
I've had some tests.. an EMG, 'brain scan' (don't know the term), seen a few neurologists (but they only do the normal "walk on your heels", squeeze your fingers, etc. tests) and had a lot of blood tests. I had a slight B12 deficiancy but I've been taking pills for that now for a long time without any help at all.
I don't know what to do, my doctor seems to have given up and seeing other doctors isn't much help either, they just have no clue and won't send me to more neurologists since I've seen a few already.
But it keeps getting worse and worse, albeit rather slowly.
Any input would be greatly appreciated!