Olitodd89
New member
- Joined
- Mar 2, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- BC
- City
- Victoria
First of all I want to say thank you for taking the time to read my post and thank you for all that this forum does to educate and help those struggling with ALS.
I have also read the forum stickies with all the info.
I am 33 year old man, with no history of ALS in my family and one person who had MS.
Like most of the undiagnosed on here I have been overcome with anxiety/fear/depression for the past 2 months thinking I might have ALS:
-It started with a weird nerve tingling in my right groin area, then came back as a stiffness in my right calf and right arm, I got an appointment with a doctor, he ordered a full spectrum blood test, everything came back normal - no thyroid issues, vitamin deficiencies, etc.
-Went to see another doctor, tested reflexes, everything seemed normal as well
-Since then I’ve been experiencing intermittent tongue issues - numb tingling at the end, and my “s” sounds weird, and sometimes feels like i stumble over my words, tongue feels dry and “big” in my mouth sometimes, and this weird feeling when I open my mouth sometimes like my
Jaws are more stuck together, like a plunger, like my skull feels more gravity pushing together , weird I know, other days it feels tired/strained, like I’ve been trying to stick my tongue out for hours or something, also have felt a dry/lump feeling in my throat, sometimes it feels like I have issues swallowing, I don’t choke on food or can’t chew it or anything (maybe that’s all in my head as I of course have this overwhelming anxiety/fear now thanks to Dr. google).
-Right arm now feels heavy, tired, as if I’ve been holding it out straight in front of my for hours, it’s not that I can’t do anything with it, it’s just that I notice it more now, and even holding my iPhone in my right hand/arm feels heavier compared to my left,
-Bottom of right foot now feels tender, and twitching intermittently on one/inner side, sometimes feels weird walking on it, like it feels more boney or something like I can feel my heel more, no dragging or flopping though, and I haven’t tripped or fallen over. My wife tried massaging the bottom of my right foot and it was so sensitive like every nerve ending was alive and I had lots of knots.
-Right leg feels heavy and stiff alot too, sometimes sitting in an upright position feels like my right leg starts to get tired quickly inside. My wife also massages my right leg and I have some nasty knots, I was yelping in pain.
-for a while it felt like my nerves are always on, and sometimes like my right arm and leg have fallen asleep, sometimes feels like an internal tremor or shakiness, but not visible, tingling and numbness in toes, fingertips, raw/tender feeling in palms of hands, sweaty hands and feet, and like I am more aware of my toes and fingers, right finger fingers feels like it rests/sometimes on middle finger, I can still move and use all my fingers and toes, just a weird feeling!.
-Saw another doctor and they ordered an appt. with a neurologist - but I am in Canada so it probably won’t be for several months.
I want to summarize by saying, nothing has failed. I haven’t lost weight, still eating the same. I am not slurring my words, my friends and family haven’t said “your speech sounds different”, I haven’t tripped or fallen, I can still walk, walk on my toes, walk on my heels, do calf raises, point my toes, lift things, open and button things, I don’t have over-product of saliva, the weirdest and most worrisome symptoms for me are the dry/heavy/stiff/tingling/sometimes numb tongue feeling and sometimes lump in throat/scratchy/sore throat/sometimes like throat is pulsating feeling and the stiffness in my leg and tenderness in my foot.
- I was out of shape, very thin, so trying to exercise again and stretch and my partner helps to massage, and I am able to do squats, pushups, went for a run, but had to stop a lot as I am out of shape and it stills feels weird on my right foot.
My apologies, I know I have said a lot and thrown a lot of symptoms out there, but just wanted to get your folks educated opinion, even though I know you are not doctors and cannot diagnose.
Thank you for your time, I appreciate you taking the time to read and answer.
I have also read the forum stickies with all the info.
I am 33 year old man, with no history of ALS in my family and one person who had MS.
Like most of the undiagnosed on here I have been overcome with anxiety/fear/depression for the past 2 months thinking I might have ALS:
-It started with a weird nerve tingling in my right groin area, then came back as a stiffness in my right calf and right arm, I got an appointment with a doctor, he ordered a full spectrum blood test, everything came back normal - no thyroid issues, vitamin deficiencies, etc.
-Went to see another doctor, tested reflexes, everything seemed normal as well
-Since then I’ve been experiencing intermittent tongue issues - numb tingling at the end, and my “s” sounds weird, and sometimes feels like i stumble over my words, tongue feels dry and “big” in my mouth sometimes, and this weird feeling when I open my mouth sometimes like my
Jaws are more stuck together, like a plunger, like my skull feels more gravity pushing together , weird I know, other days it feels tired/strained, like I’ve been trying to stick my tongue out for hours or something, also have felt a dry/lump feeling in my throat, sometimes it feels like I have issues swallowing, I don’t choke on food or can’t chew it or anything (maybe that’s all in my head as I of course have this overwhelming anxiety/fear now thanks to Dr. google).
-Right arm now feels heavy, tired, as if I’ve been holding it out straight in front of my for hours, it’s not that I can’t do anything with it, it’s just that I notice it more now, and even holding my iPhone in my right hand/arm feels heavier compared to my left,
-Bottom of right foot now feels tender, and twitching intermittently on one/inner side, sometimes feels weird walking on it, like it feels more boney or something like I can feel my heel more, no dragging or flopping though, and I haven’t tripped or fallen over. My wife tried massaging the bottom of my right foot and it was so sensitive like every nerve ending was alive and I had lots of knots.
-Right leg feels heavy and stiff alot too, sometimes sitting in an upright position feels like my right leg starts to get tired quickly inside. My wife also massages my right leg and I have some nasty knots, I was yelping in pain.
-for a while it felt like my nerves are always on, and sometimes like my right arm and leg have fallen asleep, sometimes feels like an internal tremor or shakiness, but not visible, tingling and numbness in toes, fingertips, raw/tender feeling in palms of hands, sweaty hands and feet, and like I am more aware of my toes and fingers, right finger fingers feels like it rests/sometimes on middle finger, I can still move and use all my fingers and toes, just a weird feeling!.
-Saw another doctor and they ordered an appt. with a neurologist - but I am in Canada so it probably won’t be for several months.
I want to summarize by saying, nothing has failed. I haven’t lost weight, still eating the same. I am not slurring my words, my friends and family haven’t said “your speech sounds different”, I haven’t tripped or fallen, I can still walk, walk on my toes, walk on my heels, do calf raises, point my toes, lift things, open and button things, I don’t have over-product of saliva, the weirdest and most worrisome symptoms for me are the dry/heavy/stiff/tingling/sometimes numb tongue feeling and sometimes lump in throat/scratchy/sore throat/sometimes like throat is pulsating feeling and the stiffness in my leg and tenderness in my foot.
- I was out of shape, very thin, so trying to exercise again and stretch and my partner helps to massage, and I am able to do squats, pushups, went for a run, but had to stop a lot as I am out of shape and it stills feels weird on my right foot.
My apologies, I know I have said a lot and thrown a lot of symptoms out there, but just wanted to get your folks educated opinion, even though I know you are not doctors and cannot diagnose.
Thank you for your time, I appreciate you taking the time to read and answer.
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