wheeler641
Distinguished member
- Joined
- Oct 19, 2008
- Messages
- 196
- Country
- US
- State
- indiana
- City
- dyer
thanks for replying rose, I just have so much going on that I really do not know what I will do if it keeps getting wotse, about 6 months ago my sed rate was 56, than it jumped to about 80 thats when he put me on prednisone 10mg a day, well now the sed rate is 130 so I guess maybe I need more, but for what? tried getting an earlier appointment with the rheumy, they said they would call me if they had a cancellation. Should of insisted on seeing one sooner instead of sitting aroung getting worse. I don't want to complain too much, I know there are a lot of people on this forum who are in worse shape than I am, I just want answers. The twitching started about the same time I started the prednisone, so maybe it is a reaction to that. The twitching does not bother much anymore it comes and goes, it us all over and not localized at all. It is the constant pain and the stiffness that is my main concern. Maybe I should try 20 mg of prednisone, Whats the worst it could do to me, I am already bloated and my hair is breaking off. Have'nt told any of children yet, how I feel, I think they still think I am wonder women, they are all grown and married and hate to complain to them. Since my husband had a stroke two years ago he hasn't been quite right so I do not want to lay any of this on him, well thamks for letting me vent. I am angry with myself for letting this get to this point, without insisting I see someone else or be tested for other things, I just don't buy the diagnosed of polymyalgia rheumatica.