Katherine777
New member
- Joined
- Jan 23, 2020
- Messages
- 6
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- State
- NY
- City
- Norwich
Sorry to post here again. I really didn't want to but i feel i have no choice, i am 42 year old female by the way. I am becoming very anxious about my ongoing symptoms and as everything is hold with this corona virus all my tests have been put on hold. I posted here back in January i think. This is when is saw my neurologist.
Just a bit of background info, i have something called ganglionopathy, it causes like a stinging pain all over the body,its nerve damage, i was diagnosed a few years ago. I noticed a few years back that I had funny feelings in my throat which i just put down to the condition, thinking well its affected everywhere else so must be affecting my throat. However, it seemed to have progressed, and when i drink liquids, it seems to be i will gulp gulp and then there is like delay, i can still swallow,i don't choke, but this has been happening now for a year, it has more or less stayed the same. I have also had for example chips stuck in my throat.
I have also noticed very subtle issues with speech going back a few years, even back to 2016, for example, at work i used to always struggle to say " holiday", didn't think much of it as at the time i was taking Lyrica so i put it down to the meds but not on meds anymore, However, i've noticed that the consonant issue is getting worse, for example, i have issues with the letter "l" and R sometimes i can't seem to pronounce the letters, its really embarrasing when i'm on the phone, Ill seem to muddle the consonants up too.
My neurologist didn't seem concerned about my speech but i didn't see him for long enough for him to notice, but its been very subtle over the years. I am waiting to have an endoscopy and a swallow study, then after this an EMG, however everything on hold....So do you think it can present this way? Sorry if i have asked this before but it does all seem a bit weird with the pronouncing words issue. I also have some tongue and gum numbness, i know it normally isn't part of this condition but it seems to happen all at once.
Just a bit of background info, i have something called ganglionopathy, it causes like a stinging pain all over the body,its nerve damage, i was diagnosed a few years ago. I noticed a few years back that I had funny feelings in my throat which i just put down to the condition, thinking well its affected everywhere else so must be affecting my throat. However, it seemed to have progressed, and when i drink liquids, it seems to be i will gulp gulp and then there is like delay, i can still swallow,i don't choke, but this has been happening now for a year, it has more or less stayed the same. I have also had for example chips stuck in my throat.
I have also noticed very subtle issues with speech going back a few years, even back to 2016, for example, at work i used to always struggle to say " holiday", didn't think much of it as at the time i was taking Lyrica so i put it down to the meds but not on meds anymore, However, i've noticed that the consonant issue is getting worse, for example, i have issues with the letter "l" and R sometimes i can't seem to pronounce the letters, its really embarrasing when i'm on the phone, Ill seem to muddle the consonants up too.
My neurologist didn't seem concerned about my speech but i didn't see him for long enough for him to notice, but its been very subtle over the years. I am waiting to have an endoscopy and a swallow study, then after this an EMG, however everything on hold....So do you think it can present this way? Sorry if i have asked this before but it does all seem a bit weird with the pronouncing words issue. I also have some tongue and gum numbness, i know it normally isn't part of this condition but it seems to happen all at once.
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