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This thread is now closed.

Other posts or attempts to start a thread with further discussion of RCH4 will be deleted.

Any account that discusses RCH4 via other means such as visitor or private messaging will be subject to an immediate ban, with all such messages deleted. This decision has entailed much deliberation, and is not open to debate.

There are other sites that are more suited for tracking and reporting, such as PatientsLikeMe, where those using RCH4 are free to post reports and data. But for our forums, where we focus on living and dying with ALS, this topic is no longer helpful to our members. The reasons why have been extensively discussed.

Please also be reminded of our Conditions of Service, in which abusive language, commercial advocacy, fundraising, registering an account under false pretenses, and other attempts to unduly influence others' behavior are not allowed.

These Conditions, to which you agreed on registering your account, also specify that "You agree that the webmaster, administrator and moderators of this forum have the right to remove, edit, move or close any topic at any time should they see fit." And the same is true of individual posts.

We appreciate the combined efforts of those of you who have posted in good faith in this thread, and all of you who do so in other threads. It is in the spirit of that community that this decision was made.
 
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