Anxietymom
Member
- Joined
- Mar 28, 2018
- Messages
- 10
- Reason
- Learn about ALS
- Country
- US
- State
- New York
- City
- Long Island
Hi I had posted last week about being curious about my symptoms. I have had several people tell me that I do not show symptoms of als but I am still full of doubt. My twitches are still there but there are longer periods of time that I don’t feel them for the passed week I suppose. The fear i have if from having a Hoffman sign in both hands. I showed three doctors. Two said they have never heard of that as a definitive diagnosis for any disease and one said that I shouldn’t be worried about it at all because I didn’t have hyper knee reflexes or ankle clonus. The doctor I saw was a general practice doctor and while I want to trust what she says, the internet is telling me otherwise. I continue to be able to do every day things but I am noticing I am clearing my throat a lot more than usual. Im just wondering if Hoffman’s actually means something is wrong despite having other wise normal reflexes. Out of curiosity I checked it on my sister in law and she had the same reaction I did except hers had thumb movement whereas mine is only a small tenting of my index finger. I know this forum is no substitute for a health care professional but I would really like some insight. I have had this sense of dread since February 21. I initially looked up als because I fell asleep and when I woke up I was biting my lip and it felt numb I know now that that is not a symptom but after I looked it up and saw that twitching was a symptom I suddenly started twitching when I tried to fall asleep at night and then it started happening when I was sitting down and now occasionally when I am standing still my butt will twitch. Like I said I have been to doctors and they all said I don’t need further testing and I have also called two neurologists office who said give it time. I just don’t know what to think at this point.