- Joined
- Feb 22, 2020
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- CORONA DEL MAR
Hello: My mom and my uncle both passed from ALS. I am 76 years old. 25 months ago my legs felt heavy and I started the doctor chase I have had 3 emg tests which have been negative.
However in the last 2-3 months stiffness in my back, shoulder and neck have increased. I go to UCI Health ALS and Neuromuscular located in Orange County. My next appt. is 5/6. I am still active and today I swam 800 yards. I swam in college. I can get around but I am content to read and tv surf
I use valium to take off the edge. I try to do the "one day at a time" but I think what the hell is going to happen next. I don't know how my mom fought to the very end. I am not sure I can go the same route.
I realize diagnosis for als takes awhile but after 2 years.!! (Back in the day. 53 years)
TY for reading, Dennis
However in the last 2-3 months stiffness in my back, shoulder and neck have increased. I go to UCI Health ALS and Neuromuscular located in Orange County. My next appt. is 5/6. I am still active and today I swam 800 yards. I swam in college. I can get around but I am content to read and tv surf
I use valium to take off the edge. I try to do the "one day at a time" but I think what the hell is going to happen next. I don't know how my mom fought to the very end. I am not sure I can go the same route.
I realize diagnosis for als takes awhile but after 2 years.!! (Back in the day. 53 years)
TY for reading, Dennis