- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
Hi Everyone,
I know its been awhile since I have posted. I just felt that today was right.
The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever thought possible. He made it a lot longer then his doctors believed.
We both feel that its because I found this group right after diagnosis. There are so many here that I owe a eternal gratitude to. You took me under your wings as we started this journey. You guided me every step of the way. You gave me strength and knowledge that enabled Steve to recieve the best of care. You taught me to be stronger than I ever thought possible.
My heart broke each time I logged in here... the past year and I just couldn't stay strong for him after coming to love so many of you here. I am totally amazed at CALS like Tillie, Laurie and Mike who dedicate so much of thier time to the new CALS. You were all such a rope for me.
For those that are still on this journey...the support you recieve here will get you through. You will come out the other side a stronger and more caring person.
As for Steve....he will be weaned off the mask starting Weds or Thursday after family has said thier final goodbyes and have left. I am virtually a basket case but trying my best to stay strong for the man who saved me 19 years ago.
My life was changed by him. His support of my choices was unwavering, his ability to let me spread my wings and fly. Never once telling me no or stopping me.He loved this crazy dare devil girl...just as she was. He gave me 19 wonderful years and it was a incredible journey.
My heart is truly breaking and I don't know if I will ever find true joy again. I know I will continue to chase my dreams, try crazy stuff, travel and experience new things. He will be in my heart forever. I know I will hear these four words for the rest of my life.
YOU CAN DO IT...BABY!
I know its been awhile since I have posted. I just felt that today was right.
The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever thought possible. He made it a lot longer then his doctors believed.
We both feel that its because I found this group right after diagnosis. There are so many here that I owe a eternal gratitude to. You took me under your wings as we started this journey. You guided me every step of the way. You gave me strength and knowledge that enabled Steve to recieve the best of care. You taught me to be stronger than I ever thought possible.
My heart broke each time I logged in here... the past year and I just couldn't stay strong for him after coming to love so many of you here. I am totally amazed at CALS like Tillie, Laurie and Mike who dedicate so much of thier time to the new CALS. You were all such a rope for me.
For those that are still on this journey...the support you recieve here will get you through. You will come out the other side a stronger and more caring person.
As for Steve....he will be weaned off the mask starting Weds or Thursday after family has said thier final goodbyes and have left. I am virtually a basket case but trying my best to stay strong for the man who saved me 19 years ago.
My life was changed by him. His support of my choices was unwavering, his ability to let me spread my wings and fly. Never once telling me no or stopping me.He loved this crazy dare devil girl...just as she was. He gave me 19 wonderful years and it was a incredible journey.
My heart is truly breaking and I don't know if I will ever find true joy again. I know I will continue to chase my dreams, try crazy stuff, travel and experience new things. He will be in my heart forever. I know I will hear these four words for the rest of my life.
YOU CAN DO IT...BABY!