Steve Gleason Act - Action Needed

Status
Not open for further replies.

Lkaibel

Very helpful member
Forum Supporter
Joined
May 9, 2016
Messages
1,458
Reason
Lost a loved one
Diagnosis
06/2016
Country
US
State
MN
City
Minneapolis
Signed! I am co side ring writing Team Gleason to help advocate for better homecare benifits for ALS.
 

Wilson2009

Distinguished member
Joined
May 4, 2017
Messages
247
Reason
PALS
Diagnosis
01/2017
Country
US
State
KS
City
Lenexa
This is so important. I strongly encourage all PALS and CALS to take a couple of minutes to send a message of support their Senators and Representative.
 

scaredwifetx

Very helpful member
Forum Supporter
Joined
Jul 25, 2015
Messages
1,573
Reason
CALS
Diagnosis
07/2015
Country
US
State
tx
City
Dallas
Signed. It's so very important.
 

JimInVA

Senior member
Forum Supporter
Joined
May 29, 2014
Messages
959
Reason
Lost a loved one
Diagnosis
04/2014
Country
US
State
VA
City
Poquoson
That only took half of a moment. Thanks!!
 

chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
City
renick
Great! Thanks
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,710
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
City
Pittsburgh
Just sent mine
 

mpnatx

Distinguished member
Joined
Aug 5, 2014
Messages
368
Reason
PALS
Diagnosis
11/2014
Country
US
State
Texas
City
Austin
Sent mine in!
 

Bestfriends14

Very helpful member
Forum Supporter
Joined
May 7, 2017
Messages
1,274
Reason
CALS
Diagnosis
05/2017
Country
CA
State
AB
City
CALGARY
I shared with American friends who have signed and shared! I'm keeping my fingers crossed for friends South of the border.
 

KarenNWendyn

Moderator
Forum Supporter
Joined
Jul 29, 2017
Messages
3,762
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
Did it. Simple and easy. Just click on the link.
 

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
706
Reason
Lost a loved one
Diagnosis
08/2014
Country
US
State
NJ
City
X
Signed and shared on Facebook. Got a ton of people saying they signed. Some shared again too.
 

KimT

Extremely helpful member
Forum Supporter
Joined
Nov 18, 2014
Messages
4,148
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
Signed. Took one minute.
 

2daughters

New member
Joined
Feb 1, 2018
Messages
4
Reason
CALS
Diagnosis
06/2015
Country
US
State
Louisiana
City
Shreveport
I signed and shared on facebook. Took about 5 seconds. This bill passed through the House last night, but Steve Gleason says the effort in the Senate may be more challenging. Praying it makes it through!
 

Romeosc

Distinguished member
Joined
Jan 2, 2018
Messages
129
Reason
PALS
Diagnosis
11/2017
Country
US
State
TN
City
Memphis
Canned response from Sen Corker

"Thank you for taking the time to contact my office about the Steve Gleason Act of 2017. Your input is important to me, and I appreciate the time you took to share your thoughts.

I share your desire to ensure proper devices are available for those suffering with neurological diseases, and I appreciate your advocacy on behalf of this important issue. I understand that many people who suffer from a variety of disabling diseases rely on speech-generating devices (SGDs) for communication. People with Amyotrophic Lateral Sclerosis (ALS), such as former NFL football player Steve Gleason of the New Orleans Saints, are especially reliant on this technology and its coverage by Medicare. As you know, the Steve Gleason Act of 2017 would amend the Social Security Act by permanently removing the rental cap for SGDs. This legislation builds on Congressional actions in 2015 and is currently pending before the Senate Finance Committee. Should it come before the full Senate for a vote, I will certainly keep your thoughts in mind.

Thank you again for your letter. I hope you will continue to share your thoughts with me.

Sincerely,

Bob Corker
United States Senator"
 

rknt50a

Distinguished member
Joined
Aug 14, 2006
Messages
214
Reason
Lost a loved one
Diagnosis
09/1996
Country
US
State
IN
City
IN
It passed! Thanks, all.
 
Status
Not open for further replies.
Top