• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here

Stephen Winthrop

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Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,821
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
A fellow Mass General patient who was an advocate for PALS and trustee for ALSA. He was a brave and good man who fought a long battle ( diagnosed in 2013). He will be much missed.

Deepest condolences to his family and friends
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,532
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
Hugs to Stephen’s family. May they have peace as he flies free.
 

JimInVA

Forum Supporter
Senior member
Joined
May 29, 2014
Messages
785
Reason
CALS
Diagnosis
04/2014
Country
US
State
VA
Thank you, Stephen, for your advocacy for PALS. My best to his family and friends.


Jim
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,468
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
Thank you Stephen. Comfort to his family and friends.
 

Vincent

Senior member
Joined
Dec 30, 2013
Messages
937
Reason
PALS
Diagnosis
08/2014
Country
CA
State
ON
The ALS community in Canada just lost one of our biggest champions. Eddie K LeFrancois was diagnosed in March of 1992 at the age of 23. His world was crushed, but he went on and lived with a fierceness and joy that most able bodied couldn't keep up with. He lent his voice to ALS advocacy and fundraising to find a cure. In 2017, to celebrate 25 years with ALS he decided to go skydiving. No one would take him up in a plane to jump so he went indoor skydiving instead. Not having his arms tied to him the wind on the machine had his arms flailing wildly. He looked like he was going to beat someone to death, or himself. He had a great time. it wasn't till a couple hours that his arms started to get sore. He had broken both arms and lost what little use of his arms he still had. We met up at a conference the next day, so I asked was it worth it? He got the biggest smile on his face and said, Yes!. We have big shoes to fill....
Vincent
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,708
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
Always sad to lose such talented people.
 
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