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Nikki J

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Joined
Mar 22, 2012
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16,378
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
This is an illustration of the fallacy of nothing to lose by trying.

We always advise people who ask not to go to stem cell for pay clinics.

These people did not have MND but this story shows how tragic results can be from unproven “ treatments”. There are PALS who have lost various functions after trying stem cells for pay.

https://www.washingtonpost.com/news...blinded/?noredirect=on&utm_term=.888801643a7c
 
Thanks for posting this, Nikki. There's also quite a prevalent fallacy here in Calgary of Chinese Medicine "doctors" telling ALS patients that they have Lyme disease and not ALS, even though they exhibit no Lyme symptoms. The cost to treat this runs close to $100 K.
 
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Yes, the Lyme myth persists, fueled by the cash cow of lifelong Lyme treatment. A scholarly study found no greater prevalence of Lyme antibodies in PALS than in the general population. As always, potential mimics should be ruled out before anyone gets an ALS diagnosis.
 
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