- Joined
- Feb 23, 2014
- Messages
- 2,636
- Reason
- Lost a loved one
- Diagnosis
- 01/2014
- Country
- US
- State
- NC
- City
- Littleton
We just came back from Matt's one month Lunasin Study appointment, where I broke down and cried. The only suprising thing about those tears is that they were happy ones.
We knew Matt had started wiggling toes on the right foot after not being able to move the leg, foot, or toes at all for months. That started at week one. He wiggled those toes to our great delight. What I didn't expect was to see him move his entire foot off the footplate of his chair and then move it backwards 4 inches while attempting to return it to the footplate. We all three, he, the study coordinator, and I, sat there with our mouths open until I started crying the third time he did it.
Fasciculations have also reappeared in his upper thighs, but just at night when he's in bed.
What else? I think his arms are a bit stronger, but we'll hold off on any pronouncements there until we're sure it's not wishful thinking.
We're told that four people so far have seen or felt some sort of improvement (of the 30 taking the supplement now).
We talked a little about Mike Duff. It seems he saw improvement and stability for about two years before things started sliding again.
I'll take it. Let's hope this is for real that than it lasts at least that long.
Becky
Queen of Hopeful Thinking (which is a very, very scary thing)
We knew Matt had started wiggling toes on the right foot after not being able to move the leg, foot, or toes at all for months. That started at week one. He wiggled those toes to our great delight. What I didn't expect was to see him move his entire foot off the footplate of his chair and then move it backwards 4 inches while attempting to return it to the footplate. We all three, he, the study coordinator, and I, sat there with our mouths open until I started crying the third time he did it.
Fasciculations have also reappeared in his upper thighs, but just at night when he's in bed.
What else? I think his arms are a bit stronger, but we'll hold off on any pronouncements there until we're sure it's not wishful thinking.
We're told that four people so far have seen or felt some sort of improvement (of the 30 taking the supplement now).
We talked a little about Mike Duff. It seems he saw improvement and stability for about two years before things started sliding again.
I'll take it. Let's hope this is for real that than it lasts at least that long.
Becky
Queen of Hopeful Thinking (which is a very, very scary thing)