SpeedyMarie
Active member
- Joined
- May 24, 2019
- Messages
- 38
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- TX
- City
- Houston
Hello everyone!
So I had my first Speech therapy session today. I’m losing voice power a bit so order for voice banking and my therapist is ordering several eye gaze machines to figure out what will work best so I can practice before I need it. Excellent care but my PT therapist not so comfortable. I wear support shoes Danskos they give my weak left foot and leg some support. She was stuck on tennis shoes - ugh I need ankle support I tried to show her the limited ROM and she told me well it’s not your dominate leg - I told her it has worsened I used to be able to move the foot and ankle the same as the right. My left leg drags now when walking I didn’t me she’s never seen somebody early into ALS and is only seen people that are bedbound in hospitals. Joy so she said we need to work on endurance. Hmm what is normal for PT in early ALS? Any suggestions? thanks
So I had my first Speech therapy session today. I’m losing voice power a bit so order for voice banking and my therapist is ordering several eye gaze machines to figure out what will work best so I can practice before I need it. Excellent care but my PT therapist not so comfortable. I wear support shoes Danskos they give my weak left foot and leg some support. She was stuck on tennis shoes - ugh I need ankle support I tried to show her the limited ROM and she told me well it’s not your dominate leg - I told her it has worsened I used to be able to move the foot and ankle the same as the right. My left leg drags now when walking I didn’t me she’s never seen somebody early into ALS and is only seen people that are bedbound in hospitals. Joy so she said we need to work on endurance. Hmm what is normal for PT in early ALS? Any suggestions? thanks