rasmus
Member
- Joined
- Jul 30, 2018
- Messages
- 14
- Reason
- Learn about ALS
- Country
- FI
- State
- Keski-Suomi
- City
- Jyväskylä
I spoke on the phone with a familiar doctor, who didn't seem very concerned after I explained her everything. She didn't even really comment on it other than that she thinks that it's probably nothing and not a condition of any kind.
However I've still been feeling super anxious. I read a few old threads on this forum and elsewhere, and found a lot of people saying that their ALS started with random twitching and cramping everywhere for possibly years, and then bulbar symptoms.
I feel like I slur my words even though my family insists that I don't. It feels like there's constantly mucus stuck in my throat, and after meals it very often feels like there's little crumbs of food stuck in my throat and I have to cough a little to get rid of it.
When I look in the mirror I think my tongue looks weird and thin, and there's a small dent visible on the right side of the tongue in certain positions. My dad has seen this, and he thinks it looks normal, but I'm still freaking out. I also get a slight burning sensation mostly on the right side of my tongue, but I feel like I've made this worse by constantly pushing my tongue against my teeth when I'm anxious.
I also still get the cramps, and my back still hurts, although it varies a lot from day to day. Is it reassuring that I don't get cramps/pain in some areas I used to get them often in, like my right calf?
Have you ever heard of someone under 20 having bulbar onset ALS?
However I've still been feeling super anxious. I read a few old threads on this forum and elsewhere, and found a lot of people saying that their ALS started with random twitching and cramping everywhere for possibly years, and then bulbar symptoms.
I feel like I slur my words even though my family insists that I don't. It feels like there's constantly mucus stuck in my throat, and after meals it very often feels like there's little crumbs of food stuck in my throat and I have to cough a little to get rid of it.
When I look in the mirror I think my tongue looks weird and thin, and there's a small dent visible on the right side of the tongue in certain positions. My dad has seen this, and he thinks it looks normal, but I'm still freaking out. I also get a slight burning sensation mostly on the right side of my tongue, but I feel like I've made this worse by constantly pushing my tongue against my teeth when I'm anxious.
I also still get the cramps, and my back still hurts, although it varies a lot from day to day. Is it reassuring that I don't get cramps/pain in some areas I used to get them often in, like my right calf?
Have you ever heard of someone under 20 having bulbar onset ALS?