Falli96
New member
- Joined
- Jul 8, 2019
- Messages
- 5
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- GE
- State
- BY
- City
- Nuremberg
Hello,
my name is Felix, I‘m 23 years old since July and come from Germany.
I‘m scared as hell because I‘m sure for 99% that I have ALS.
My symptoms are fasciculations, tongue twitching, split hand sign (I guess) and some weird thing when I tense my thigh. Looks like fasciculations but I don‘t feel them. Also my patellar reflex is brisk both sides the same. And my thighs are hardened on the inside.
I had an appointment with my neurologist 3-4 weeks ago. He tested my reflexes and strength and did an EMG in many muscles. Between thumb and forefinger, upper and lower arm, calf and the muscle next to the tibia (don‘t know how it is called). He told me that nothing would point to ALS and I should stop worrying about it. But he was a bit concerned about my tongue twitching. He told it can be BFS but as he is my neurologist he‘s obliged to investigate me again in three months.
But I feel and see that atrophy in my right hand progresses and it scares me as hell. Also my tongue still twitches extremly but not when it‘s at rest.
Additionally I had a cruciate ligament surgery 10 days ago that goes hand in hand with muscle wasting in my thigh. I am scared as hell that I cannot build this muscle up again and my cruciate ligament won‘t heal. I also told my neurologist this fear.
As I said I am almost absolutely sure having this desease and lying arround all day withouth being allowed to walk worsens my fear because I think about the consequences always.
Normally I trust my neurologist but as tongue twitching and split hand sign are so specific for ALS I think it can‘t be anything else. I don‘t have clinical weakness yet and can do everything. But my right thumb feels weird at typing texts for example. My parents don‘t take me seriously anymore after my appointment 3-4 weeks ago.
I know pictures don‘t help you much but I want to show why split hand sign scares me so much. I also know small the chance is to have this disease at my age especially as there is no ALS history in my family. I‘m scared that the EMG was performed to shortly, only 5 minutes per muscle. Don‘t want to waste anyone‘s time but I‘m going crazy here and can‘t concentrate on anything else.
Best regards and sorry for my bad english
Felix
my name is Felix, I‘m 23 years old since July and come from Germany.
I‘m scared as hell because I‘m sure for 99% that I have ALS.
My symptoms are fasciculations, tongue twitching, split hand sign (I guess) and some weird thing when I tense my thigh. Looks like fasciculations but I don‘t feel them. Also my patellar reflex is brisk both sides the same. And my thighs are hardened on the inside.
I had an appointment with my neurologist 3-4 weeks ago. He tested my reflexes and strength and did an EMG in many muscles. Between thumb and forefinger, upper and lower arm, calf and the muscle next to the tibia (don‘t know how it is called). He told me that nothing would point to ALS and I should stop worrying about it. But he was a bit concerned about my tongue twitching. He told it can be BFS but as he is my neurologist he‘s obliged to investigate me again in three months.
But I feel and see that atrophy in my right hand progresses and it scares me as hell. Also my tongue still twitches extremly but not when it‘s at rest.
Additionally I had a cruciate ligament surgery 10 days ago that goes hand in hand with muscle wasting in my thigh. I am scared as hell that I cannot build this muscle up again and my cruciate ligament won‘t heal. I also told my neurologist this fear.
As I said I am almost absolutely sure having this desease and lying arround all day withouth being allowed to walk worsens my fear because I think about the consequences always.
Normally I trust my neurologist but as tongue twitching and split hand sign are so specific for ALS I think it can‘t be anything else. I don‘t have clinical weakness yet and can do everything. But my right thumb feels weird at typing texts for example. My parents don‘t take me seriously anymore after my appointment 3-4 weeks ago.
I know pictures don‘t help you much but I want to show why split hand sign scares me so much. I also know small the chance is to have this disease at my age especially as there is no ALS history in my family. I‘m scared that the EMG was performed to shortly, only 5 minutes per muscle. Don‘t want to waste anyone‘s time but I‘m going crazy here and can‘t concentrate on anything else.
Best regards and sorry for my bad english
Felix
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