Dear lovely people
I have quite a long diagnostic story which I will try to cut short.
You with your experiences might be able to help me get some things straight.
I'm 26 so I know odds are in my favour but I have quite an unusual story.
2020.12.29. When looking down while running, my two thighs felt electric shock feeling.
Lhermitte sign - fear of MS.
2021.04. In an MRI a 4x4x8 mm lesion was found at the height of my neck, positioned toward the left, where my symptoms were stronger
deemed as cervical myelitis, i.e. a spinal cord inflammation.
During this 4 months pins and needles, tingling extended to my all four limbs. No weakness, no other symptom.
Lumbar puncture showed normal values except an elevated IGg index, that is there was autoimmune activity (although they said, it's also present in MNDs, so it doesn't exclude MND.
I know these all point away from MND. But now comes the twist.
2021.08 twitching started in my both calves, which has been constant for 3 months.
occasional twitching appears all over my body
tingling, pins and needles have disappear except from my left hand.
2021.09-10-11
Percieved weakness and stiffness appeared in my left hand and arm and legs, they are heavier, harder to lift.
When training my left hand and leg is getting tired really easily then stay heavy for days.
Left thumb is getting stiffer, cant play video games as used to because my muscle gets cramped easily.
So here I stand, terrified of limb weakness slowly getting worse, it doesn't limit me as of now, but if it continues like this, it definitely will in a few months.
Of course I fear of the worst: ALS.
Do you have any tips what this could be? My neurologist is specialised in Neuromuscular diseases is quite relaxed that there is no big problem, but I'm not convinced.
I feel like they labelled me with something mild, and doesn't really think of serious stuff, because of my age.
I'm thinking of getting an EMG, but I'm not sure it will give me results that I'm looking for.
Is it capable of differentiating motor neuron damage from inflammation or MND?
Because I'm scared that they would find motor neuron damage and I would be horrified while it could be from something other than MND.
Could a MND start with tingling and transform into limb weakness?
I have quite a long diagnostic story which I will try to cut short.
You with your experiences might be able to help me get some things straight.
I'm 26 so I know odds are in my favour but I have quite an unusual story.
2020.12.29. When looking down while running, my two thighs felt electric shock feeling.
Lhermitte sign - fear of MS.
2021.04. In an MRI a 4x4x8 mm lesion was found at the height of my neck, positioned toward the left, where my symptoms were stronger
deemed as cervical myelitis, i.e. a spinal cord inflammation.
During this 4 months pins and needles, tingling extended to my all four limbs. No weakness, no other symptom.
Lumbar puncture showed normal values except an elevated IGg index, that is there was autoimmune activity (although they said, it's also present in MNDs, so it doesn't exclude MND.
I know these all point away from MND. But now comes the twist.
2021.08 twitching started in my both calves, which has been constant for 3 months.
occasional twitching appears all over my body
tingling, pins and needles have disappear except from my left hand.
2021.09-10-11
Percieved weakness and stiffness appeared in my left hand and arm and legs, they are heavier, harder to lift.
When training my left hand and leg is getting tired really easily then stay heavy for days.
Left thumb is getting stiffer, cant play video games as used to because my muscle gets cramped easily.
So here I stand, terrified of limb weakness slowly getting worse, it doesn't limit me as of now, but if it continues like this, it definitely will in a few months.
Of course I fear of the worst: ALS.
Do you have any tips what this could be? My neurologist is specialised in Neuromuscular diseases is quite relaxed that there is no big problem, but I'm not convinced.
I feel like they labelled me with something mild, and doesn't really think of serious stuff, because of my age.
I'm thinking of getting an EMG, but I'm not sure it will give me results that I'm looking for.
Is it capable of differentiating motor neuron damage from inflammation or MND?
Because I'm scared that they would find motor neuron damage and I would be horrified while it could be from something other than MND.
Could a MND start with tingling and transform into limb weakness?