Sammantha
Senior member
- Joined
- Aug 11, 2007
- Messages
- 501
- Country
- Uni
- State
- NC
- City
- Newport
Hi everyone, i am a little down today.... I actually had a great time with my husband last night we went out to dinner and there was music playing.... I begged my hubby to dance like always, but this time i was dancing for all of ten minutes when i just couldn't muster the energy no more and had to go home. My boys have been saying for awhile that they cant understand or here what i said but i thought that was because they had selective hearing. When i was at there ballgame saturday my friend kept asking me to repeat what i said, and that is when i asked if my voice was that low... She said no its not that your voice is low its just that when you talk your words all go together, and you sound like you are really tired like a person that is talking but is so tired that they are struggling.. My friend does not know anything about my condition, just that i have been going to the doctors and that i have some muscle wasting. It is moments like these that make me realize that this is progressing its not stopping, what should i do. I already have no income no insurance... My mouth area just started twitching, yes i have had jaw and face cramps with tongue twitching but i have had that for almost two years, now that there is more twitching it seems that it has spead up.. I have to conciously think to close my mouth because it hangs open... My natural facial expression is dopey looking and people think i am sad when i am not.. I wish there was a support group in the area, its really hard going through this alone.... I am so greatful for this website..Sam