canmark
Distinguished member
- Joined
- Jul 19, 2013
- Messages
- 111
- Reason
- PALS
- Diagnosis
- 07/2013
- Country
- CA
- State
- Ontario
- City
- Toronto
I’ve recently noticed some issues with my speech, and I’m wondering if anyone has experienced similar. My ALS progression has been pretty much exclusively LMN. That is, my body is weak and limp. I’m not able to walk, dress, bathe or feed myself. However, I am able to eat and speak normally. What I’ve noticed recently is that when I speak for long periods of time I will often have an (unintentional) pause at the end of a sentence or sometimes even in the middle of a sentence. There is no slurring (that I can detect) but it’s making my speech a bit choppy. I’m wondering if these pauses are because my breathing is weak and I’m stopping for breath. (Note: I am NOT on a BiPAP.)
I’ve had a nurse asked me if I’ve ever been out of breath and I’ve said no, because I interpreted out of breath to mean gasping for breath due to strenuous activity. But perhaps the choppy speech pattern could be a sign of being out of breath.
Has anyone experienced this? Does this sound more like a breath issue, or is it a possible bulbar issue?
I’ve had a nurse asked me if I’ve ever been out of breath and I’ve said no, because I interpreted out of breath to mean gasping for breath due to strenuous activity. But perhaps the choppy speech pattern could be a sign of being out of breath.
Has anyone experienced this? Does this sound more like a breath issue, or is it a possible bulbar issue?