- Mar 15, 2021
- Learn about ALS
sorry for long post. I am from India. female 28Y .I started having issue since 3 years back around jan 2018 . first started with weak bladder and random sharp pain all over the body(lasting for few seconds). did MRI with contrast and CT scan. came back normal. got married soon after that.symptoms kept on increasing as shortness of breath during talking, occasional slurring like saying butter for better and increased urinary leakage with eye floaters. after one year around jan 2019 did nerve conduction study which came back normal. got pregnant quickly and gave birth to special needs child. during pregnancy there was no symptoms. after pregnancy, symptoms kept on getting worse like weakness on both hands(fingers and toes),random muscle twitching all over the body(2 to 5 twitches ) especially hands and legs occasionally stomach. even starting saying wrong words like 20 to 25 times a day. occasional shoulder blade pain,numbness in toes, worst fatigue but still walks fine and use hand fine but my fingers have been thin. sharp pain lasting few seconds in random place still there for past 3 years..recently dexterity has been decreased on both hands..I fear its ALS, my husband left us after my son diagnosis. my fear is all time high thinking my son future if it happens to be ALS.Could it be ALS? I need to fight for my son. I can fight anything cancer.not ALS. I have nobody to take care basically my parents are already too old. I have arrange for baby sitter even to go for EMG.