Corina
New member
- Joined
- Dec 23, 2015
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 02/2015
- Country
- US
- State
- CA
- City
- Somewhere
I'm wondering what others have experienced in their loved ones as far as speech. My mom can't speak anymore but we started noticing significant changes about 4 months ago. She wasn't able to form coherent sentences anymore and would mainly only repeat the words "I know" and "Benny" (my dad's name). Anything we said or asked her was replied to with "I know" but she could signal yes or no. I've been reading various threads and noticed people saying that their loved one wouldn't admit that the disease was progressing or that they were ok with certain things, like having a peg tube. Being that my mom hasn't been able to talk for a few months now, I'm wondering if something else is going on or does it go back to every case is different and every person experiences different things?
BTW, I'm so glad I found this forum. It's so relieving to have people to talk to who understand and have been through it. In a way I hate when friends of my mom come around who haven't seen her in over a year and have all these opinions of what should be done but don't understand the disease at all. I try to inform them but some how I always get one of two reponses from them. 1. You need pray. Yes, because I haven't already prayed, begged, pleaded and cried to God to please make this all better. 2. Have you tried natural remedies? Right, because if there were a natural remedy for ALS and FTD the whole world wouldn't already know about it.
BTW, I'm so glad I found this forum. It's so relieving to have people to talk to who understand and have been through it. In a way I hate when friends of my mom come around who haven't seen her in over a year and have all these opinions of what should be done but don't understand the disease at all. I try to inform them but some how I always get one of two reponses from them. 1. You need pray. Yes, because I haven't already prayed, begged, pleaded and cried to God to please make this all better. 2. Have you tried natural remedies? Right, because if there were a natural remedy for ALS and FTD the whole world wouldn't already know about it.