NiKky
New member
- Joined
- Oct 18, 2011
- Messages
- 7
- Diagnosis
- 10/2011
- Country
- US
- State
- NY
- City
- Woodhaven
Katie, thank you for your kind words and yes, it was a late diagnoses and he is progressing fairly quickly.. The house in Cape Cod is easier for him to get around in since everything is one floor. Something the case workers, my mother, the doctors and the nurses have all agreed on, is best for him. There is also a support system for them up there for both of my parents, which would also consist of my sister & I being there every weekend.
Trfogey, I'm so sorry that I used a support forum to vent my feelings. You know nothing of my relationship with my parents other than the things I have vented in this forum. Therefore, if you want to misinterpret things or read only what you want, that's fine but, please keep snide remarks to yourself. Considering you don't know me, my family or our situation completely, I don't appreciate condescending input. Also, since it's a family disease, I would say it does affect me as well. So in the future when you try to "help" the child of someone with ALS, maybe you should choose your words wiser and try not to kick them while they're already down.
Barbie, sincerely, thank you for your kind words. You really did make me feel a little better, I wasn't even going to come back to the forum because I didn't want to read anymore comments from people trying making me feel like I'm wrong for feeling the way I feel. You & Katie are right and all I can do is take it 1 day at a time (even though that is easier said than done) & that's what I plan on continuing to do. It just sucks when you have no one to talk to about this stuff & when you think you found multiple people that might understand, I have to be judged and ridiculed before I find someone who actually kinda gets it or isn't such a jerk to me because of how I feel.
Trfogey, I'm so sorry that I used a support forum to vent my feelings. You know nothing of my relationship with my parents other than the things I have vented in this forum. Therefore, if you want to misinterpret things or read only what you want, that's fine but, please keep snide remarks to yourself. Considering you don't know me, my family or our situation completely, I don't appreciate condescending input. Also, since it's a family disease, I would say it does affect me as well. So in the future when you try to "help" the child of someone with ALS, maybe you should choose your words wiser and try not to kick them while they're already down.
Barbie, sincerely, thank you for your kind words. You really did make me feel a little better, I wasn't even going to come back to the forum because I didn't want to read anymore comments from people trying making me feel like I'm wrong for feeling the way I feel. You & Katie are right and all I can do is take it 1 day at a time (even though that is easier said than done) & that's what I plan on continuing to do. It just sucks when you have no one to talk to about this stuff & when you think you found multiple people that might understand, I have to be judged and ridiculed before I find someone who actually kinda gets it or isn't such a jerk to me because of how I feel.