- Apr 14, 2019
Hi all! In 2019 we’ve been on a crazy journey from mild shoulder pain to no limb movement and full 24/7 Trilogy use. With a diagnosis on 4 January and several months of rapid progression, it’s fair to say this year has mainly been too much to handle. Both my PALS and I have birthdays coming up: in fact, we have them on consecutive days. It’s the first one post diagnosis so I’m struggling to think what could still be meaningful/fun/useful etc. Nice toiletries are sorted, though for bed bath rather than the shower. Tasty food to eat at home, though the mask makes that a little trickier. Perhaps an audiobook or something? How do you adapt to the lack of mobility but choose something entertaining? Any suggestions from other CALS whose PALS have enjoyed something from either the bed or recliner? Thanks very much in advance.