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Gmr8691

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Earlier this year i ended up in the hospital with rhabdomyolisis brought on by a very underactive thyroid. Well ever since then i have felt like crap. Tinnitus, fatigue, unbalanced feeling and some other issues. Some days worse than others. This jas been going on since june 2018.

On christmas day i was laying in bed and all of a sudden got a random twitch in my right thigh muscle. Then the next day or two after that i noticed twitches were popping up everywhere in my body, my calves, shoulders, arms, buttocks, thighs and feet, stomach and chest and even a few in my left hand but the hand ones went away.

Here a few days ago the twitching in my right foot arch have been constant. More noticable when at rest and very annoying. My doctor has blew it off as dehydration and anxiety and has me on two anxiety depression pills. None seem to be working. It seems its getting worse with time and im very worried. Im not sure if i have any weakness. Atleast i havnt noticed any. Has anybody else had this kind of issue.
 
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lgelb

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If you don't think you're anxious or depressed, you might consider tapering off the pills, in consultation with your doc, as they can cause their own issues. Any other rx you are taking should be re-evaluated periodically as well.

I would try a dab of magnesium lotion on the right arch, and double-check your diet for B vitamins, iron, magnesium, calcium and potassium, among others, especially in the sense of getting a good balance every day, consistently. Stretching morning and night is another preventive to try.

There's nothing in what you say that suggests ALS, which is great news.

Best,
Laurie
 

Gmr8691

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Im on levothyroxine for my thyroid also. Im on 175 mcg. I go on the 11th to see the endocrinologist for the first time. I only take the anxiety meds when i get to feeling anxious. I hate taking pills period but ik i have to take the levo or i could get rhabdomyolysis again. It almost killed me the first time, i sure dont want it again. Im hoping that maybe my issues are bc of my thyroid as ive read that thyroid problems can cause twitching especially if its hyperthyroidism, anyway thanks for the reply laurie.
 

lgelb

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Thyroid dosage that needs to be adjusted up or down could certainly contribute, so that's a good discussion to have with the endo, with regular follow-ups to make sure things are on track. Best of luck.
 

Gmr8691

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Dont know weather to be worried or not anymore

Ok for the past month and a half i jave been getting twitches all over my body. First of which started in my left upper thigh. The it would start randomy popping up in random areas all over my body. Stomach, calves, thighs, feet, biceps and lips.

Here a couple days ago i started getting a twitch in my right knee and it twitched nonstop for 3 days and it was so irritating. I didnt sleep very well at all because of it. For a few weeks now ive had bad tingling in the arch of my right foot and twitching of mostly the big toe. It has not showed any signs of slowing down.

Around when this all started there were a few times that id just be sitting there and my hand would all of a sudden inch shut involuntarily and my leg would kick involuntarily.

Ive mentioned all this to my doc and she just shrugged it off as anxiety. Ive had anxiety my whole life and never have i had these problems and they just seem to be getting worse. My legs have been feeling kinda weird for awhile now to. Mostly around my knees.

Where i work at i walk on a concrete floor 8 hours a day and have been for the past 10 years. Here lately ive been getting some aches in my feet and knees and biceps. Ik pain usually points away from ALS, but is it possible it could be. My whole body has been fatigued. Not sure if im experiencing weakness or not? What does everyone think.
 
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lgelb

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Re: Dont know weather to be worried or not anymore

You have described neither clinical weakness nor ALS.

If your work is standing, you could get a gel mat to spare your legs and back from some of the pressure.

Your primary care doc can screen you for restless leg syndrome, which can affect the arms, too, and should be able to suggest other things to try to feel better. If she's not up for that, there are other docs in the sea.

You might also take a careful look at things like sleep and stress, which anxiety can affect, as well as diet, hydration and exercise. Since aging makes some of these harder to keep up with, it's never wrong to re-assess. Given your job, I'd certainly do stretching in the morning and after work.

The good news is, you don't belong here.

Best,
Laurie
 

Gmr8691

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Re: Dont know weather to be worried or not anymore

Thanks for the reply. Ive been taking vitamin supplements and drinking as much water as i possibly can to see if it makes a difference. So far it hasnt yet. Doctor also has me on sleeping pill which doesnt help me sleep at all just makes me feel really horrible in the morning, really drowsy and lightheaded. I go to see my doc this thursday. Im gonna see what she thinks it could be. I might not have als but i do believe i have something odd going on, i can sense something isnt right. Ive had very rare illness in the past so its hard for me to just let go, if you know what i mean.
 

lgelb

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Re: Dont know weather to be worried or not anymore

You don't have to keep taking a pill that makes you feel awful and doesn't work:)

I know what you mean, but there are rarer diseases than ALS, and lots of problems you can have besides ALS, if that's of any comfort. And most of them are much more treatable.

Let us know what your doc says.
 

ShiftKicker

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Mod note- merged threads. Gmr, please keep posting here, in your already open thread. It helps people follow and obtain all the pertinent info in one place.
 

Gmr8691

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Well i seen the doctor today, shes gonna test my parathyroid glands bc they can cause muscle twitching if the levels of calcium are off. If everything negative shes sending me to neurologist. Really worried now. She said twitches can be widespread in als and start that way as the first sympton
 

KarenNWendyn

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The hallmark of ALS is muscle function failure, and you have not described that. Twitching is common, nonspecific, and meaningless in the absence of muscle function failure. It doesn’t matter if your twitching is body-wide, localized, fast, slow, constant, or intermittent.

You very well could have a metabolic problem (which includes parathyroid and thyroid abnormalities) with your history of rhabdomyolyisis. But you have nothing that suggests ALS. Nothing.

If you see a neurologist and your neurological exam is normal, please believe them when they tell you no ALS.
 

Gmr8691

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Thank you for the reply, i hope its all connected to my thyroid problems and that it can be fixed. Its so annoying especially the foot arch twitches nonstop for weeks.
 

Gmr8691

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Well the results to the blood test to check my parathyroid came back negative so calcium isnt the culprit. Dr refused to refer me to a neurologist and also didnt even look at my foot where im having most of the issues now. I can still walk on it but there is a wierd feeling in the arch of my foot that seems to be getting worse. There is a little pain when i stand on it but nothing serious. It still twitches alot in the same spot. Not really sure if there is any atrophy, but i dont know what else to do about it. Its making things at work so difficult.
 

Nikki J

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Work is difficult? Surely not from twitching? From the discomfort in your feet and legs? That is something that doesn’t sound like ALS but should be addressed. Possibly a podiatrist or maybe an occupational health specialist.

You likely will have better luck with your pcp if you pursue this avanue rather than neurology. Clearly she does not think your issues are neurologic
 
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