Doe
Member
- Joined
- Sep 14, 2020
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SD
- State
- VG
- City
- Gothenburg
Hello all, a while back I posted a thread regarding my condition/symptoms.
I have been in a very bad place mentally where my family decided that it was time for me to get help at a psychatric ward as I was more or less psychotic due to mental stress and excarbated symptoms. Got some help there and they evaluated my condition and I did a gastroscopy where they found a hiatal hernia and an inflamed colon. Still waiting for the results of the inflammation.
Hoping to get an appointment with my GP again since my symptoms doesn’t improve. I literally have fasciculations everywhere as soon as I raise my arm for an example. My shoulders are very very weak. Same with my knees. They get exhausted very easily, and I shake very much in certain positions, especially when I walk down the stairs. Like a tremor so to speak. Get those in my as well.
Getting cramp like sensations, especially in my feet and my feet lock up some times. Intercostal and ribcage spasms and tightness there, might have an inflammation there as well. The buzzing feeling in my hands have I adressed to my fasciculations in my instrinct muscles in my hand.
But what really bothers me now is that I can’t feel when I swallow anymore. It’s like the receptors within have been damaged. This happened after I did an movement which involved my chest area. It literally felt like I broke something in there and my GP told it’s literally inpossible. But I don’t know.. something has happened. Could nerves be so brittle that they can snap off or so if you push your body in an awkward position?
I am still convinced I have this disease, but my CK levels are normal, so are my thyroid levels. My liver and kidney status were almost perfect which makes me sure this is of a neurological nature, als that is.
Some feedback would be appreciated. Do you think I should push the GP more to send ne to a neuro? Last time she said she wouldn’t due to the lack of evidence.
Take care all. Hope you’re doing well.
/D
I have been in a very bad place mentally where my family decided that it was time for me to get help at a psychatric ward as I was more or less psychotic due to mental stress and excarbated symptoms. Got some help there and they evaluated my condition and I did a gastroscopy where they found a hiatal hernia and an inflamed colon. Still waiting for the results of the inflammation.
Hoping to get an appointment with my GP again since my symptoms doesn’t improve. I literally have fasciculations everywhere as soon as I raise my arm for an example. My shoulders are very very weak. Same with my knees. They get exhausted very easily, and I shake very much in certain positions, especially when I walk down the stairs. Like a tremor so to speak. Get those in my as well.
Getting cramp like sensations, especially in my feet and my feet lock up some times. Intercostal and ribcage spasms and tightness there, might have an inflammation there as well. The buzzing feeling in my hands have I adressed to my fasciculations in my instrinct muscles in my hand.
But what really bothers me now is that I can’t feel when I swallow anymore. It’s like the receptors within have been damaged. This happened after I did an movement which involved my chest area. It literally felt like I broke something in there and my GP told it’s literally inpossible. But I don’t know.. something has happened. Could nerves be so brittle that they can snap off or so if you push your body in an awkward position?
I am still convinced I have this disease, but my CK levels are normal, so are my thyroid levels. My liver and kidney status were almost perfect which makes me sure this is of a neurological nature, als that is.
Some feedback would be appreciated. Do you think I should push the GP more to send ne to a neuro? Last time she said she wouldn’t due to the lack of evidence.
Take care all. Hope you’re doing well.
/D