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lostinlouisville

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Went to get lumbar results, No Lyme, slightly elevated igg and protein, which made this Dr. think autoimmune, so he went back and looked at MRI of brain from Dr.#1, said he saw 3 lesions and would not rule out MS, yet. So maybe closer, maybe not, any input?

Thanks, Renee
 

lydia

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Renee, were those lesions commented on/observed by the first doctor when the MRI results were initially examined?
 

lovelily

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Hi Renee...Well, it definitely looks like the doctors have something to work with. Not sure why Dr. #1 ignored the lesions, to begin with.

Thanks for the update~Continued prayers while you search for your answers!
 

planningguy

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I'm glad things are starting to come into focus. Hopefully this is the start of coming up with a strategy to take care of business. Odd that the first Doc missed the lesions, but since most specialists request to look at original films and data, probably not a total surprise.

Robert
 

lostinlouisville

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Lydia

Yes, the first Dr. saw them, did not think 3 would qualify for MS and He said who ever read the MRI did not comment on MS. This second DR. thinks the first DR. might have felt differently if he had the lumbar puncture results. Does anything I am saying make sense?
 

crystalkk

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Renee,


It is definately a start.....
Did he say the spots on the MRI correlate with your symptoms. Did he recommend a MS Specialist.
 

rose

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Renee,

It sounds like to me that something may have been overlooked. However, there also are parameters where the doctors don't get concerned about lesions. I've had 3 nodules in my lungs, and lesions on my liver that were discovered during my diagnostic journey, and none of the doctors have felt they were significant. If my lung nodules get a little larger they want to biopsy one, but the way it was put to me, if they develop into something, it would be something separate from my other stuff, because they feel they're not indicative of anything that could have caused my problems.

If nothing else, maybe this will cause a re-examination of what they think they've ruled out.

Are you going to go see a MS specialist?
 

jennibf

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Maybe I missed something but did you get the lumbar puncture results back and did they have the "O" bands (can't think of the spelling)?
 

awieleba

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Hi Renee

Did they say where the lesions are? Ihave alot of small lesions in the white matter of brian and was diagnosed with ms 10 yrs ago and then after a spinal and ncv and a trip to a specialist they said no ms. I was thrilled at the time and all my sx went away. They have come and gone and always wondered if I did have ms. I still yet to have a spinal since the onset of my sx. Just wondering where they were. ?
 

lostinlouisville

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Jenn, I did get the lumbar back, He did not say anything about o bands, just elevated IgG and protein levels, Which lead him to believe autoimmune.

April, He showed me the lesions, just 3 and pretty big, I think, I don't know what part of the brain other than white matter. He did mention remitting or progressive, He said mine sounds more progressive than remitting, which I think means chronic over longer period of time maybe with slower progression and remitting would be kind of like what you said with the coming and going. I don't really know but my GP called later today to tell me the nuro wants to start me with specialist, so I am in their referral list to get to this week.

Thanks for all the comments and I feel really like I know nothing about this and will have to learn more.
 

Zaphoon

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Renee,

It is good that things are finally coming together (so it would seem, anyway).

PPMS differs from typical MS in that it doesn't exacerbate and remit (hit you then let up). Pretty much steady-eddy but it seems to me it operates on some kind of a bell curve (I think).

Anyway, the good news is, you are getting closer and closer to an answer. You seem to have a leading position in the "race".
 

awieleba

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Renee,

I hope this leads you in a direction where you get answers and treatment. I think of you often and hope that you are doing well with that big family to take care of!

Best wishes!

april
 

rose

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Renee, I believe that Laurel has said that she herself has MS (Her hubby has MMN) maybe you could pm her....
 

awieleba

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I 'thought' that it had been said that if you have protien or Ig in your spinal fluid it could be cipd? or was it something else? Just a thought, isnt cipd autoimmune?...
 

hopingforcure

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Not sure if she has this, but CIPD does not have brisk reflexes as a symptom, that was what my second Dr. brought of for me many moon's ago, but the brisk reflexes and clonus, pointed away from that. MS does have brisk reflexes and clonus in the symptoms.
 
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