Status
Not open for further replies.

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,743
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
I REALLY DID'NT THINK YOU WERE LOL:razz:
 

prometheus

Active member
Joined
Feb 28, 2008
Messages
41
Reason
Learn about ALS
Country
US
State
US
City
private
But now you KNOW I'm not... it's been clinically proven by the moderators:p
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,556
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
LOL, Prometheus! Can't wait till I tell the family that I have ability to pick out a looney. I wonder who I will DX first among them...:twisted:
 

prometheus

Active member
Joined
Feb 28, 2008
Messages
41
Reason
Learn about ALS
Country
US
State
US
City
private
I'm sure your family is proud! With enough worry and sleep deprivation I think any of us can act a bit looney at times.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,556
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Thanks.

I am sort of running on empty lately. I feel short of breath, mostly while sleeping and often when doing any sort of activity. It is mild enough so that I've been putting off going back to the clinic but that day is coming. And I'm conflicted: I don't want a DX but I don't want to hear "we can't say what this is unless and untill it gets worse."

Plus I have a little extra on my plate myself: my Mom is dying and I try to spend every spare moment by her side. And my daughter is due in 2 weeks and has her foot in a cast and can't drive so I take her to her appointments at the rate of 2-3 a week.

Seems the only upside these days is coming here. That and the fact that, apparently, being a little SOB and slightly light-headed makes me feel just a bit giddy and looney, LOL. :-D
 

Geo

Senior member
Joined
Aug 24, 2007
Messages
500
Reason
DX UMND/PLS
Diagnosis
12/2001
Country
US
State
Florida
City
Ruskin
Cindy If your on Baclofen no doubt your short of Breath . Are you on it ? i cant have it thats why .It relaxes the diaphram tooooo much .Geo
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,556
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
I am not on it but it sounds like it might help me. At night I wake with all my muscles contracting really tight - starts in my right foot and travels up my leg to my arm -and then my chest, back, and down the left side. So somethign that realxes the muscles sounds good right about now! :-D
 

Judith

Distinguished member
Joined
Jan 31, 2007
Messages
341
Reason
DX UMND/PLS
Diagnosis
12/2006
Country
US
State
CA
City
Yucca Valley
Hi Prometheus,
I got your email. I went to your blog and commented. Our God is soooo good.
Judy
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,544
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
For the benefit of some of the newer members who may not know about the thread for Christians to share with on another, do a search for a thread titled,
Christians Here To Help You And Talk,
also another one to look at is,
Encouragement for Hurting Christians
I look forward to your comments.
 

xina

New member
Joined
Mar 14, 2008
Messages
8
Reason
DX UMND/PLS
Diagnosis
01/2008
Country
US
State
NY
City
Albany
the tapping is called clonus. it is when a muscle 'bounces' or 'continues stretching in beats' when it should not. clonus does not happen in healthy adult humans. it's interesting b/c it was one of the first signs noted by the physical therapist before i was sent to a neurologist. i never knew it was something indicating a neurological problem because i think i had it for a long long time before any doctor ever noticed it.
 

hopingforcure

Very helpful member
Joined
Feb 14, 2008
Messages
1,425
Diagnosis
09/2007
Country
US
State
USA
City
Any
Hi Xina, neat name, Clonus was one of my first symptoms also, mine can get pretty nasty some days. Welcome to the board, if you have not met AL and Cindy the moderators yet, they will surely be along soon, they give so much time and effort to this board, it is a life line for so many of us..Hoping
 

Judith

Distinguished member
Joined
Jan 31, 2007
Messages
341
Reason
DX UMND/PLS
Diagnosis
12/2006
Country
US
State
CA
City
Yucca Valley
Thank you,
Judith
 
Status
Not open for further replies.
Top