Some advice please??

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Jfarrell96

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Hello I have been here before in the past panicking thinking I have MND I saw a neurologist in 2020 January he ruled it out by physical exam, since Halloween of this year I get I was slurring my speech I have muscle twitches everywhere I had muscle twitches in 2019 upto now, I was re-referred back to my neurologist and he said what he’s said on the form attached, I am 25 years old I am petrified of bulbar MND, my question is would it be rare for a neurologist to see me in 2020 and I get told I don’t have MND to then in 2021 get MND I am so scared I keep getting emotional about it
 
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ShiftKicker

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Hi there- It's pretty clear from this communication that your specialists do not see MND in your symptoms and recommend you seek support for your anxiety about it. Continuing to seek advice on this forum is not appropriate, as we are not specialists, nor can we provide you the in-person examinations and care doctors can.

You have been provided links to anxiety resources here in the past. If these are not sufficient, you must seek proper care via your doctors. There is simply nothing we can do here to support you, as this forum is for those who have been diagnosed with ALS and their caregivers.

I am closing this thread. Please do not open another. It is hoped you will seek more appropriate care and stop focusing on a disease your specialists do not detect, despite repeated examinations and multiple tests.

(note, I have clipped the body of the letter which contains the most pertinent info for your purposes, as you had posted the whole letter, which had all of your identifying info on it)
 
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