sodium phenylbutyrate

Status
Not open for further replies.
Why did you start on that supplement, Kim?
 
A brand name for sodium phenylbutyrate is "Buphenyl." Sometimes the brand name is easier to find.

Here in the USA the compounds approved by Medicare and (Part D) supplement insurance varies from state to state, even with the same parent Insurance Company. In California, sodium phenylbutyrate is not a compound covered by any insurance policy, although it is listed as a Tier 4 drug formulation (they recognize it exists, but offer zero subsidy). An MD can prescribe sodium phenylbutyrate in California, but the discounted cost is about $3000/month at the recommended dose. PALS in California will have to wait for FDA approval before the treatment is economical.
 
Status
Not open for further replies.
Back
Top