- Joined
- Jul 29, 2017
- Messages
- 3,933
- Reason
- PALS
- Diagnosis
- 07/2017
- Country
- US
- State
- OR
- City
- Southern Oregon
I’m getting a G-tube next week. Eating has become too problematic. My pulmonologist wants me to get most of my nutrition through the tube because she thinks I am starting to aspirate, or will certainly be more likely to do so over time.
Eating, as we know, is a social activity. When people get together, food is often involved. Then there are the holiday meals. Thanksgiving, in particular, is an important tradition in my family.
I’m envisioning getting a tube feeding before or after a social meal, and then I sit there amidst the company while they eat, hoping to participate in the social experience. Perhaps I sample or taste a bit of food if it’s safe, or perhaps not.
I’m curious how the experience has been for people here, both from the standpoint of the PALS as well as the CALS and others at the table. Is it uncomfortable for the PALS to sit there while others eat? Does it change the social dynamics for those eating if the PALS is sitting there not eating? How about for a simple meal with a friend or one’s partner? Do you think people try to get through their meal faster or enjoy it any less?
Eating, as we know, is a social activity. When people get together, food is often involved. Then there are the holiday meals. Thanksgiving, in particular, is an important tradition in my family.
I’m envisioning getting a tube feeding before or after a social meal, and then I sit there amidst the company while they eat, hoping to participate in the social experience. Perhaps I sample or taste a bit of food if it’s safe, or perhaps not.
I’m curious how the experience has been for people here, both from the standpoint of the PALS as well as the CALS and others at the table. Is it uncomfortable for the PALS to sit there while others eat? Does it change the social dynamics for those eating if the PALS is sitting there not eating? How about for a simple meal with a friend or one’s partner? Do you think people try to get through their meal faster or enjoy it any less?