Thank you all for responding. I swear we are going to wake up from this bad dream but the morning never comes. We have so many emotions going on...My husband and I just had a baby girl 4 months ago and its hard to even be happy for her milestones when we know that Joe (my father-in-law) will loose all that she gains. I also wondering if my husband will ever have this, though, there is no FALS that runds in the family and now my daughter.....
Its been about a year process with his diagnosis...EMG, muscle biopsies...finally he got to the best Specialist in our Pittsburgh Pa area. He is still walking with a cane and driving...though he is WEAK, that is the word of the year, WEAK..having a hard time writing but still going...
My sister in law and I have have been trying to contact our local ALS support group with no luck in getting a call back...I feel as though I am only functioning at 50%...meaning when I am 100% I will be better at researching a little more...
I must admit, though my in-laws are finacial OK....I am scared to think of the costs...He was approved for Medicare and has insurance but I wonder what we are in for...and we, I, am scared to see him so sick...Thank you all for being here...