so scared husband has ALS

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BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
Libby, I'm so sorry your husband has this disease ... but I'm glad you found this forum. There are some very helpful people here ... both patients and caregivers ... who will be able to give you support and advice. Feel free to ask questions, and express your feelings.

Hang in there,
BethU
 

libby laxton

New member
Joined
Sep 15, 2008
Messages
4
Reason
CALS
Diagnosis
06/2008
Country
US
State
nc
City
hudson
Thank You! I Am So Happy That Someone Cared Enough To Take The Time To Write Me Back. I Have Been Crying All Evening.
 

trying to stay positive

Distinguished member
Joined
Sep 17, 2007
Messages
300
Reason
CALS
Diagnosis
08/2007
Country
US
State
Illinois
City
Chicago area
Hi Libby,
I'm sorry about your hubby's ALS DX. My husband was DX last August. I think the first few months or so are really hard. At least they were for me. I walked around in a fog and would cry at the drop of a hat. It does get easier. Honest. Is your husband registered with the ALS Association and with the MDA? They will give you alot of help and info. Take care. There are so many wonderful people on this forum. Feel free to ask questions.
Linda
 

brendapals

Senior member
Joined
Jul 6, 2008
Messages
953
Reason
PALS
Diagnosis
06/2008
Country
US
State
any
City
any
Libby,
Please take a deep breath my dear. I'm so sorry for you and your husband, but until someone finds a cure for this awful disease, we must remain as warriors!

I was diagnosed on 6/3/08, and am elated to say that nothing has progressed, worsened, gotten better, anything, since then. I am still working 4 days a week as a nurse, still yelling at my hubby and kids when I need to, still pulling weeds on the weekend and chasing the kids around to all of the ballfields.

yes, it is a tremendous emotional roller-coaster, but you are not on this ride alone! Everyone on here will make you feel like one of our family-it's ok to vent, cry, talk, share, anything you need to, and I assure you, you will have support bigger than you can ever imagine.

Never give up,
Never let up,
Never lose faith,
brenda
 

libby laxton

New member
Joined
Sep 15, 2008
Messages
4
Reason
CALS
Diagnosis
06/2008
Country
US
State
nc
City
hudson
Thank You

Thank You

My Son Returned From The Iraq War This Past Christmas And Now My Husband Has Als. My Son Has Orders To Go Back To Iraq After The First Of The New Year Again.

God Please Protect My Family.
 

Debbie53

Active member
Joined
Aug 16, 2008
Messages
86
Reason
Lost a loved one
Country
US
State
Colorado
City
Greeley
Hi, Libby. I haven't been here very long, either, and I'm afraid I've been doing a lot more taking than giving. But this is a great place to find people who have been there and who care. I'm sorry about your husband. It's easy to feel overwhelmed and alone when caring for someone with als. There is no point (at least in my dad's case) when you can just say, ok, he's going to be at this level for awhile, because every day he gets a little worse. And you know it's terminal, so there is no real getting better. It's exhausting to say at the end of the day, I haven't helped him get well. But you can give him your love. I guess that's the most important thing.
 

libby laxton

New member
Joined
Sep 15, 2008
Messages
4
Reason
CALS
Diagnosis
06/2008
Country
US
State
nc
City
hudson
Thank you God for the wonderful angels on this forum.

Thank you.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi libby. Sorry about your husband. Can your son ask for compassionate leave from the Forces?

AL.
 

linray

Active member
Joined
May 21, 2008
Messages
56
Reason
Loved one DX
Diagnosis
3/2008
Country
US
State
NJ
City
Freehold
Hi Libby,
I am so sorry about your husband's diagnosis. My husband was diagnosed in March 08. This forum is the best for info, venting, whatever. The beginning is so hard is't it? It is such a roller coaster. My husband stopped working already but I am working full time plus. It is so hard to leave him in the mornings and come to work even though his progression has been slow.
I will pray for you.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
I am sorry to hear this, Libby. You have a challenge ahead of you but we wil be with you every step of the way. Hugs, Cindy
 

cbrown7777

New member
Joined
Sep 13, 2008
Messages
4
Reason
Loved one DX
Country
US
State
south carolina
City
charleston
What a tough situation, I'm so sorry Libby. I will keep you and your family in my thoughts. When you're able to, look up the ALS chapter nearest you (Duke has an ALS program as well. You may find resources there too) They can be a very good source of all kinds of information. and it's a 'starting point' - I know you feel like you've just been hit in the head with a baseball bat. Cry, talk, scream, whatever you need to do for you, your husband, or your son. Be patient with yourself. Best wishes as you begin the 'fight'. Carrie
 

Seren

New member
Joined
Sep 13, 2008
Messages
3
Reason
CALS
Diagnosis
09/2007
Country
UK
State
Mid-Glamorgan
City
Pontypridd
Hi Libby

I'm new here too,but already think i'll be here often, it seems a good place for support.

My brother was diagnosed a year ago next week. For six months I cried everytime I was alone. Then I thought heck, this is a special time, I must make the most of it. Since then we have been away five times and we are going to Lourdes, (Sth of France) in Oct. It's not easy and I still cry regularly, even yesterday, my mums birthday.

Libby, we have the time to show our love. So often life goes by quickly and we don't appreciate what we have. One thing this awful. cruel disease does is gives us a chance to make the most of every minute we have.

I will keep you in my prayers. I found my faith difficult at first, but my brothers has grown so much. Iam trying to find the strength and faith he has.

take care andGod bless
 

Kevinski

Active member
Joined
May 23, 2006
Messages
70
Reason
PALS
Country
CA
State
Alberta
City
Calgary
Live thru the ups and downs

I wa sdiagnosed last summer with als bulbar onset,i am lucky that its my speech which has gone ,i do get tired easily ,but am thankfull for what I can still do.My kids 19 and 17 did a 110 km bike ride for Bettys walk and Run in Calgary in June ,I was the ambassedor for the event.And have been involved in fundraisers and have had to do some speeches etc,I just get someone to read what i have written for me.To be sure this disease is no walk in the park and at times I think it is harder on my family and loved ones than myself.I am past asking why me .It is what it is and hopefully I will continue to cope with the challenges as they come along.My message to my family and friends is do not feel sad for me.Continue to chase your goals and dreams,because if you fixate on this disease and dont live life ,well this disease wins on all fronts.So I say to your family try and be happy and live life as best as you can under difficult circumstances .I don't know your husband ,but I would bet he would want the family to live and find happiness.Good luck and be strong and tell your husband to be strong to..Carpe Diem (thats Latin for seize the day)...Kevin from Calgary
 
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