- Joined
- Sep 22, 2016
- Messages
- 156
- Reason
- PALS
- Diagnosis
- 4/2016
- Country
- US
- State
- GA
- City
- Roswell
I was diagnosed in APR 2019, Symptoms since 2013 (no one would listen). I was still running 15 miles a week, once a month with a 80 pound rucksack. One day with ruck 3 miles out, I collapsed. Staggered back to my car dragging ruck. I demanded from my pcp a neurologist. He said we did that, and 5 MRIs. Same neurologist said, he did not know, referred me to an old school neurologist … he listened, reviewed my test and he said the three letters We all fear...IRS. He said ALS really.
Fast forward 3.5 years, I walk with a rollator, my wife scrubs me down. Terrible table manners and sometimes words meant to stay in my thoughts jump out of my mouth.
So explain to me why it does NOT affecting my dreams. Sometimes I get out of the chair and just walk to the bathroom without rollator. Huh? Anyone similar ?
Fast forward 3.5 years, I walk with a rollator, my wife scrubs me down. Terrible table manners and sometimes words meant to stay in my thoughts jump out of my mouth.
So explain to me why it does NOT affecting my dreams. Sometimes I get out of the chair and just walk to the bathroom without rollator. Huh? Anyone similar ?