So my brain still thinks WE are still Superman!

Jhettinger

Forum Supporter
Active member
Joined
Sep 22, 2016
Messages
96
Reason
PALS
Diagnosis
4/2016
Country
US
State
GA
I was diagnosed in APR 2019, Symptoms since 2013 (no one would listen). I was still running 15 miles a week, once a month with a 80 pound rucksack. One day with ruck 3 miles out, I collapsed. Staggered back to my car dragging ruck. I demanded from my pcp a neurologist. He said we did that, and 5 MRIs. Same neurologist said, he did not know, referred me to an old school neurologist … he listened, reviewed my test and he said the three letters We all fear...IRS. He said ALS really.

Fast forward 3.5 years, I walk with a rollator, my wife scrubs me down. Terrible table manners and sometimes words meant to stay in my thoughts jump out of my mouth.

So explain to me why it does NOT affecting my dreams. Sometimes I get out of the chair and just walk to the bathroom without rollator. Huh? Anyone similar ?
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,519
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
I've dreamed I'm still running on the beach. I do hope these dreams continue.
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,833
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
Yes, I’m more able-bodied in my dreams than in waking life. It sucks when the dreams are better than the reality.
 

blitzc

Distinguished member
Joined
Apr 20, 2018
Messages
242
Reason
PALS
Diagnosis
01/2018
Country
US
State
OH
Me too! Lots of running, walking and activity...:cry:
Why? Makes me not want to wake up. Is this how God is preparing me?
 

nona

Forum Supporter
Distinguished member
Joined
Oct 1, 2018
Messages
205
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
I love those dreams!
 

Jhettinger

Forum Supporter
Active member
Joined
Sep 22, 2016
Messages
96
Reason
PALS
Diagnosis
4/2016
Country
US
State
GA
Refuge from the limitless chaos
 

Vincent

Senior member
Joined
Dec 30, 2013
Messages
951
Reason
PALS
Diagnosis
08/2014
Country
CA
State
ON
I now get to enjoy long, slow walks in the rain. Running just isn't happening anymore. I still dream i'm bombing through the woods on a pair of racing skis. It's a real let down waking up.
Vincent
 

nona

Forum Supporter
Distinguished member
Joined
Oct 1, 2018
Messages
205
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
When I can't sleep, I visualize my favorite running trails and golf courses. I find that it brings me peace because otherwise I'll never see them again.
 
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