Cmelot
New member
- Joined
- Sep 8, 2013
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- Arizona
- City
- Phoenix
I know there are many people on this forum suffering from this awful disease and I don't want to waste anyone's time, but I feel my fears are valid. I am just looking for a little feedback.
To start, I am an otherwise healthy 26 year old female and I understand my chances of having ALS are very low. My symptoms started about 5 months ago with a sudden onset of difficulty swallowing. I do fine with liquids, but when I eat an solids I cannot initiate the swallow without taking a drink. I've seen a GI doctor and had a normal EGD. I saw a neurologist for an unrelated issue and brought up my swallowing difficulties, but he seemed unconcerned because I had a clear MRI. I feel like I have some difficulty speaking but nobody else has seemed to notice. My neurologist suggested I see an ENT and have an appointment set up for next month.
The last couple weeks I have developed constant muscle twitching, especially in my legs. I don't have any clinical weakness, but my right leg and arm are very stiff and have even been limping at times.
My swallowing did not seem to be getting worse but I blew my nose after eating tonight and food came out. I am not generally an anxious or paranoid person, but I am very scared. I am just wondering if I should be going back to my neurologist demanding more testing or just follow up with the ENT as suggested. Should I even be concerned about ALS?
Thank you to anybody who took the time to read this. Any input would be greatly appreciated. God bless.
To start, I am an otherwise healthy 26 year old female and I understand my chances of having ALS are very low. My symptoms started about 5 months ago with a sudden onset of difficulty swallowing. I do fine with liquids, but when I eat an solids I cannot initiate the swallow without taking a drink. I've seen a GI doctor and had a normal EGD. I saw a neurologist for an unrelated issue and brought up my swallowing difficulties, but he seemed unconcerned because I had a clear MRI. I feel like I have some difficulty speaking but nobody else has seemed to notice. My neurologist suggested I see an ENT and have an appointment set up for next month.
The last couple weeks I have developed constant muscle twitching, especially in my legs. I don't have any clinical weakness, but my right leg and arm are very stiff and have even been limping at times.
My swallowing did not seem to be getting worse but I blew my nose after eating tonight and food came out. I am not generally an anxious or paranoid person, but I am very scared. I am just wondering if I should be going back to my neurologist demanding more testing or just follow up with the ENT as suggested. Should I even be concerned about ALS?
Thank you to anybody who took the time to read this. Any input would be greatly appreciated. God bless.