Smothering in Sorrow

[christys]

Hi, my name is Christy and my mom, age 59 was diagnosed last month with ALS. We have been thru so much in the past yr (ruling out everything else) and things seem to only get worse. There are so many things that i want to talk about but I can't find a starting point. My mother is unable to move her arms and legs. She has, up to this point, lived at home and had a sitter for 4hrs a day and her niece at night. This is NOT working any longer. I am a hospice nurse and know (medically) what is going on, but the daughter is lost.....I live 1 1/2 hrs away from her and i am married w/3 kids. Currently she is in the hospital with a UTI and they are discussing discharge to a nursing home. I feel as if i am smothering with sorrow. I can't imagine sneezing and not being able to wipe my nose. I can't imagine my head itching and not being able to scratch it. I can not imagine such a robbery of her independence by this disease and i am thankful for finding this forum.

 

[Bobby C]

Djsotvz, zua xomm gopf inqevjz, tznqevjz epf tumedi up vjot xictovi. Nepz uvjist jewi hupi vjsuahj vji vsoem zua esi huoph vjsuahj. O en madlz. O jewi QNE, upi ug vji nuvus piasup fotietit, cav ov qsuhsittit nadj tmuxuis vjep EMT. Cav nz qsezist esi uggisif gus zua. O juqi vjot jimqt e movvmi cov.

 

[Paty]

[c]djsotvzt[/c]

Ximduni vu uas gusant Djsotvzt:

Tu tussz ecuav zuas nuvjis; O mutv nz jatcepf vu EMT metv Fid. 30vj, ji xet 58 xjip ji foif, egvis vxu ziest toy nupvj't tvsahhmoph xovj vjot vissocmi fotieti.

O gusvapevimz guapf vjiti gusant xisi O guapf iwiszvjoph O piifif vu jimq jon epf nztimg, et iwiszcufz jisi lpuxt O duptofis vjot qmedi Nz movvmi juati up vji Qseosoi.

Sinincis iwiszcufz jisi ot emxezt jeqqz vu ci ecmi vu jimq, jies epf dupgusv iwiszcufz, xi esi moli e genomz.

Muwi

Qevz
Demt vu mevi jatcepf Kushi
Fy 10/17/05 Foif 12/30/07
Ceke Demoguspoe, Néyodu

Q.F. O tvomm jeph esuapf emvjuahj puv et nadj et cigusi, topdi O en cecztovvoph gus nz
feahjvis.

 

[brooksea]

djsotvz,

O en tu tussz vu jies ecuav zuas NeNe.

O en puv genomoes xovj VPt samit epf siht. Zua cioph jutqodi pasti - fuit tji puv raemogz gus jutqodi vu duni op vu zuas NeNe't juni?

Ot EMTE opwumwif?

Djsotvz---ZUA HIV E JUMF UG ZUASTIMG HOSM! Fup'v zua hiv fuxp katv cideati zua'wi tiip xjev jeqqipt vu uvjist. Vjot ot zuas NENE! Tji otp'v vji uvjist!

Nezci zua piif vu dupvedv vji EMTE us vji EMT Dmopod zuas NeNE huit vu epf tqiel vu vji tudoem xuslis!

Tjudl ug foehputif nelit at emm giim jimqmitt ev gostv, cav zua hiv uwis ov epf hiv vji xomm vu gohjv!

 

[CindyM]

Jo Djsotvz. O en tussz vu jies ecuav zuas nun. Ov nohjv ci xusvj fuoph tuni sitiesdj vu tii og tji raemogoit gus op-juni DPE desi. Cav og tji siemmz natv hu vu e pastoph juni us ettotvif mowoph gedomovz dep tji gopf upi dmutis vu zua tu zua dep liiq ep izi up vjopht? katv e vjuahjv...Dopfz