Samy8877
New member
- Joined
- Aug 19, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UA
- State
- UA
Hi everyone my first post here after thinking countless time should I post or not
It's started 2 months ago 24-07-2021with
Heavy bicep feeling
That spreaded to entire arm/hand and right leg/foot and now if I do some work right arm and leg trembles and fatigues after little exertion
A mild impact is on left side
15-aug-2021 a mild pulling feeling under tongue while moving around gums to clear food (I ignored)
It's worsened now
Tongue feels so stiff and Trembles almost after talking and eating
I can push against cheeks and can't hold it for longer (wch is extremely abnormal for me)
I can stick out upside and all but will difficulty
And yes slurring speech
My husband says he didn't notice but I am super aware of my words
For example if I speak 100 sentences in a day I will slurr on 70sentances ( in terms of taking more power to speak and mispronouncing words )
While eating I feel problem in moving food in mouth with tongue
My jaw jerk is positive (self examine,no Dr performed but it's clearly visible)
MRI spine MRI lumber MRI brain (All clean)Emg 2 arms normal ( 1month ago) tested for MG (normal)
Other reflexes are normal
Can walk on toe etc
Had been to neurologist who said no nerve disease and stress is the cause
At that time my tongue problem was not my concern so I didn tell him
I can ignore my weakness in right arm and leg but tongue stiffness and slurring and exerting force to speak is bothering me alot (swalloing ok) my lips cheeks jaw and tongue (All are stiffening)
Is jaw jerk always means mnd ?
I will be grateful for any advice
Prayers and love for all
It's started 2 months ago 24-07-2021with
Heavy bicep feeling
That spreaded to entire arm/hand and right leg/foot and now if I do some work right arm and leg trembles and fatigues after little exertion
A mild impact is on left side
15-aug-2021 a mild pulling feeling under tongue while moving around gums to clear food (I ignored)
It's worsened now
Tongue feels so stiff and Trembles almost after talking and eating
I can push against cheeks and can't hold it for longer (wch is extremely abnormal for me)
I can stick out upside and all but will difficulty
And yes slurring speech
My husband says he didn't notice but I am super aware of my words
For example if I speak 100 sentences in a day I will slurr on 70sentances ( in terms of taking more power to speak and mispronouncing words )
While eating I feel problem in moving food in mouth with tongue
My jaw jerk is positive (self examine,no Dr performed but it's clearly visible)
MRI spine MRI lumber MRI brain (All clean)Emg 2 arms normal ( 1month ago) tested for MG (normal)
Other reflexes are normal
Can walk on toe etc
Had been to neurologist who said no nerve disease and stress is the cause
At that time my tongue problem was not my concern so I didn tell him
I can ignore my weakness in right arm and leg but tongue stiffness and slurring and exerting force to speak is bothering me alot (swalloing ok) my lips cheeks jaw and tongue (All are stiffening)
Is jaw jerk always means mnd ?
I will be grateful for any advice
Prayers and love for all