tonguetwitcher
Member
- Joined
- Feb 15, 2017
- Messages
- 19
- Reason
- Learn about ALS
- Country
- CA
- State
- Québec
- City
- Montreal
Hi !
I will try to make myself the most clear and brief as possible (you can see my other post for more information).
In brief:
October 2016: tongue bitting and what lookd like fasciculation (still ther today)
December MRI...nothing
February 2017: Emg with a specialist in ALS. No sign ALS, but order test for Mysthenia Gravis (negative)
Early April 2017: Emg again with same specialist. No MG, but she now seen fasciculation on Eme. She told could be benign or could be ALS. She want another EMG in August
June 2017 Appointement with a neurologist NMD specialist. Examination normal, EMG nothing she worth mentionning to me.
March 2018: EMG again with the ALS specialist I have seen twice before. She says that shw would test me only on two places and that I must chose those places (strange it seems to me). Shouler and tricep it will be since it seems I got more twiches in that region. No change from April 2017. She says it's a good sign. Shhe says come see me again in 6-8 months so we could touch a base together. Maybe I will do more tests then.
Now here my actual situation:
-Still twitching everywhere in the body.
- i've noticed that for a month when a drink minimally (2 beer or 2 glass of wine) I begin to slurred my speech. I know it was not like that before.
I've read that with most of als patient, alcohol made their symptoms worsen or appears...
- For 2 years i have burning pain in shouldesr at minimal effort (cumbing my girls hair)
- Last week i've been to the dentist for a root canal treatment...my left cheek and lips would shake hard 3-4 times for 7-8 seconds during the procedure (45 minutes total)
- ine the last months 3-4 times i've been angry with my student (im a teacherr...in french not english obviously !) and when I raise the voice and feel overwhelmed a bit by the situation my mouth shake a lot....
I know my EMG was clean in March (well right arm was clean) , but it was 3 months ago and not in bulbar region.
Could it be the begining of you know what ? Any ideas what could give me those symptoms ?
Thanks a lot !
I will try to make myself the most clear and brief as possible (you can see my other post for more information).
In brief:
October 2016: tongue bitting and what lookd like fasciculation (still ther today)
December MRI...nothing
February 2017: Emg with a specialist in ALS. No sign ALS, but order test for Mysthenia Gravis (negative)
Early April 2017: Emg again with same specialist. No MG, but she now seen fasciculation on Eme. She told could be benign or could be ALS. She want another EMG in August
June 2017 Appointement with a neurologist NMD specialist. Examination normal, EMG nothing she worth mentionning to me.
March 2018: EMG again with the ALS specialist I have seen twice before. She says that shw would test me only on two places and that I must chose those places (strange it seems to me). Shouler and tricep it will be since it seems I got more twiches in that region. No change from April 2017. She says it's a good sign. Shhe says come see me again in 6-8 months so we could touch a base together. Maybe I will do more tests then.
Now here my actual situation:
-Still twitching everywhere in the body.
- i've noticed that for a month when a drink minimally (2 beer or 2 glass of wine) I begin to slurred my speech. I know it was not like that before.
I've read that with most of als patient, alcohol made their symptoms worsen or appears...
- For 2 years i have burning pain in shouldesr at minimal effort (cumbing my girls hair)
- Last week i've been to the dentist for a root canal treatment...my left cheek and lips would shake hard 3-4 times for 7-8 seconds during the procedure (45 minutes total)
- ine the last months 3-4 times i've been angry with my student (im a teacherr...in french not english obviously !) and when I raise the voice and feel overwhelmed a bit by the situation my mouth shake a lot....
I know my EMG was clean in March (well right arm was clean) , but it was 3 months ago and not in bulbar region.
Could it be the begining of you know what ? Any ideas what could give me those symptoms ?
Thanks a lot !