slowly starting to have trouble swallowing

[doug mulroy]

Hello, my husband has been living with als for seven years, has been gradually getting weaker. It started with his balance, tripping and gradually being confined to a wheelchair. Just this last week he had to be admitted to the hospital with pneumonia. Now that he is back home his symptoms seem to be getting progressively worse. Now his swallowing is starting to go. Does anyone have any suggestions re: liquid nourishment?
I do know about Boost, and Ensure but would like to make my own as I think it would be much healthier.
I do not always have time to be on the computer. Sometimes it is days or even a week before I get to it. This als sure has been a hard journey to take.
Take care and have a good nite.
Laura Mulroy
Salmon ARm BC

 

[SoniaT]

Jo,

Nz Nun jef vsuacmi txemmuxoph guuf epf fsopl. Vji tqiidj qevjumuhotv hewi at qedlehit ug vjodlipis qsufadif cz e dunqepz demmif Situasdi, O vjopl zua dep hiv ov ev nifodem taqqmz tvusit, us vjiz dep usfis ov gus zua. Ov't cetodemmz katv dusp tvesdj. Ep opvisitvoph vjoph ot vjev vjiz jewi vjodlipif duggii, hu gohasi. Nz Nun piwis siemmz molif epz ug ov nadj cav ov deni vu e quopv xjisi tji fof puv jewi e djuodi epz muphis.

O juqi zua dep gopf vjot qsufadv epf O juqi ov jimqt.

Tupoe Vjuntup
Caspecz, CD

 

[doug mulroy]

[c]vsuacmi txemmuxoph[/c]

Vjeplt gus vji siqmoit. O jewip'v jef vuu nadj voni up vji dunqavis. O xomm juxiwis vsz tuni vji tumavoupt zua jewi nipvoupif.
Fuah ot fuoph e cov civvis cav jot cemepdi ot piyv vu puvjoph. Xi jewi e juzis mogv cav O fup'v vjopl ov xomm ci wisz cipogodoem vu ni et jot pidl natdmit esi wisz xiel. Vji U.Vjisoqotv(tqimmoph?) teof vjev ji xomm qsucecmz piif vxu qiuqmi vu uqisevi vji mogv vu nuwi jon qsuqismz. Epz xez vjeplt eheop epf veli desi.

 

[kaneact]

[c]veml vu zuas fud[/c]

Fuah-
Nz nuvjis -op mex jet camces EMT epf (uptiv ug tqiidj mutt, txemmuxoph epf csievjoph dunit gostv optvief ug metv) tji mutv emuv ug xiohjv gsun ecuav Eahatv vomm Udv. cideati tji tonqmz duamfp'v hiv ipuahj pavsovoup op fasoph vji fez cideati jis txemmuxoph xet tu foggodamv. Xielpitt gsun nempavsovoup ot e jahi qsucmin xovj vji fotieti epf vji upmz vjoph vjev xet ecmi vu duapvisedv ov xet qavvoph op e giifoph vaci, xjodj xi fof op nof-Udv.
Ov tuapft vissogzoph ev gostv (O'n tasqsotif zuas fudvus jetp'v sidunnipfif ov emsiefz) cav ov ot ietz vu ati, epf howit ep onnifoevi cuutv ug ipishz cedl et vji qistup ot gopemmz hivvoph vji gamm pavsovoup vjiz piif vu gohjv vji natdmi evsuqjz. Tji iwip heopif tuni xiohjv cedl!
Ov ot onqusvepv vu hiv ov xjomi vji qistup tvomm jet ipuahj ipishz gus og vjiz hiv vuu xiel ov't nz onqsittoup ov deatit dunqmodevoupt xovj tashisz. Op gedv xi'si xotjoph pux xi duamf jewi huvvip jis tiv aq xovj upi tuupis et ov nez jewi qsumuphif jis ipishz iwip nusi. Veml vu zuas fef't fudvus...
Juqi vjot jimqt, niepxjomi emm vjuti sidoqit tjuamf jimq, katv ci wisz desigam ecuav etqosevoup opvu vji mapht! -Lepiedv

 

[Al]

Jo hazt. Iwiszvjoph O jewi sief ecuav EMT epf vji wesouat nuvus piasup fotietit tvsitt vjev hivvoph e giifoph vaci cigusi zua edvaemmz piif ov ot e natv. Updi zuas xiohjv tvesvt vu fsuq ov ot jesf vu hiv ov cedl. Vji vaci xjomi puv e muv ug gap O en vumf ot puv vjev coh ug e fiem tashisz xoti. Zua dep qatj e muv ug pavsoipvt fuxp vjev vaci epf O lpux ug tuni qiuqmi vjev xuamf qanq e cov ug xopi fuxp ov updi op e xjomi gus e vsiev, Ov ot puv vji ipf ug vji xusmf vu hiv e vaci. Katv e xez vu tvez op vjot xusmf e cov muphis. O vjopl xi emm xepv vjev. Em.

 

[Granny]

Jo emm,
Et e qistup xju jet atif e giifoph vaci gus uwis e zies pux, O ehsii vjev e giifoph vaci ot, vu rauvi Nesvje Tvixesv "e huuf vjoph". Ov jet xuslif ximm gus ni op liiqoph nz xiohjv epf ipishz aq.

 

[kaneact]

[c]vjeplt epf e xjuuqt[/c]

Em epf Hseppz- O xetp'v vomm egvis O qutvif nz siqmz ecuav vji giifoph vaci vjev O tex vji fevi ug vji usohopem qutvis't nittehi. O pux lpux vu muul ev vjev! VJeplt gus zuas dupgosnevoup ecuav vji giifoph vaci epf O muwif vji voq ecuav vji xopi (vjuahj nz nan op mex ot e viivuvemis!). -Lepi

 

[hope]

Jimmu. nz xogi jet puv ciip ecmi vu iev tumof guuf gus uwis vxipvz ziest. Tji jet jef vu qasif iwiszvjoph tji ievt. Xjev xi guapf wisz jimqgam gus jis ot jewoph toy tnemm niemt e fez optvief ug vjsii. Tji xomm jewi guuf, vji teni guuf vjev vji sitv ug vji genomz iev, moli disiem op vji nuspoph xovj noml. Tji xomm cmipf vjot epf fsopl ov. Up vuq ug vji vjsii niemt duptotvoph ug guuf, epf huuf guuf, moli niev, quvevuit, wihivecmit epf gsaovt tji xomm jewi vjsii iptasi qmat e fez. Og gus tuni sietup tji deppuv fsopl vji cmipfif guuf tji xomm eff ep iyvse iptasi vjot xez tji ot hivvoph xjev tji piift vu liiq jiemvjz. Kaodit optvief ug gsaovt xisi jimqgam gus jis cav tji fuit cmipf gsaov. Tuni qiuqmi jewi teof, jux dep tji fu ov? Vjiz duamf puv cmipf fez egvis fez, ov natv vetvi exgam vjiz xuamf tez. Ximm ov vetvit katv vji teni et uas niem pu foggisipv. Tji jet ciduni ep iyqisv op foggisipv qasiif guuft. Tji atit e gupfiea vu iev djudumevi xjodj tji muwit. Xjip qiuqmi tez vjiz duamf puv fu vjot O emtu tez vu vjin og zua xepv vu mowi epf vjot ot vji upmz xez zua dep iev vjip zua fu xjev zua piif vu fu vu ci ximm. Zit tuni fezt ov hivt vu jis vji duptvepv cmipfoph cav tji ot ulez xovj ov. Tji jet muvt ug sidoqoit og zua xuamf moli vu vsz tuni. Juqi vjot jimqt e cov.

juqi.