Yvme
Active member
- Joined
- Jul 18, 2014
- Messages
- 30
- Reason
- Learn about ALS
- Country
- CRO
- State
- Croatia
- City
- Zagreb
Dear all, please excuse me if I’m bothering you, I need an advice! So in january, it will be 3 and a half years since i started twitching.I twitch all over, even the places I don’t have atrophy. Since than I teitch 24/7. From the very beggining i noticed that some minor atrophy is developing and since then have slihgt atrophy of my right foot, right gastrocnemius, right thenar and 1 dorsal i. Dent in right brachioradialis, and dents in right side of my tongue. When it started almost all those places started all at once. I have had numerous EMNG, and it found only decreased recruitment with big muaps small muscles of right leg, and at the same muscles on left leg but somewhat better. NCS are all great. I know that everyone will tell that pain is not related to ALS, but I have some minor dull ache at some of the places I see atrophy. It seems like my atrophy was abrupt at the beggining, then reched some plateau, and now it started again. On neurological exam, I didnet show weaknes, but I have dynamometer at home, and my grip in my dominant hand is weaker than in my left hand. I also noticed that I dont have equal amount of strenght in my right foot compared to my left. As I said, neurologist didn’t find clinical weakness, but I can feel it and I measured it at home. Neurologist saw some of my atropies and didnt think it was atrophy since she didn’t find any active denervation while performing EMG. Some of the atrophied muscles only showed intermedian recruitment (slightly reduced, but with normal frequenc of fireing) She diagnosed me with L5/S1 root problems. But i had MR of lower spine and it is remarkable. I really dont know shat else to do. Mineral status is great, tyroid hormones also. I recently noticed that my soft palate is atrophied on right side, but can still swallow food and doesnt have problems with liquids, I only feel that my left side is working more than right. Is it possible for MND atrophy to start at many places, not to develop much only minor shrinkage (my right gastrocnemius is only 0.5 cm thiner than left) and to stay like that for 3 years, and now is progressing again? I have +2 reflexes everywher except on my knees where it is +3. I really don’t know what to do anymore. Nobody is taking me seriously, but I know that something is very wrong. Please, give me some advice...or if my symptomes sounds like something let me know. I’ m scared for too long now and can’t take it to bi in limboland anymore...
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